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  1. Haveyoutriedyoga

    "Patient's Charter for ME/CFS/PVFS"

    If there is no one place where the usual questionnaires are critiqued then I may find the time to collate what I find.
  2. Haveyoutriedyoga

    BMJ podcast: Psychological coercion in UK government workfare programmes (11 minutes), 2015

    There is a full paper somewhere out there too. Key points Route out to employment is positive mindset Lack of employment is a character deficit. Maintenance of a positive affect is woven into decisions over sanctions. Occurring in job centres and private provider premises, places of serious...
  3. Haveyoutriedyoga

    "Patient's Charter for ME/CFS/PVFS"

    I've yet to find a questionnaire that I've related to and as I understand it the rest of the ME community have thoroughly reviewed all of the ones applied to us and felt the same, does there happen to be one single review or source of information on the range of questionnaires we get prescribed...
  4. Haveyoutriedyoga

    "Patient's Charter for ME/CFS/PVFS"

    This is key, is there any general agreement over how that should be measured?
  5. Haveyoutriedyoga

    WHO: A clinical case definition of post COVID-19 condition by a Delphi consensus

    I noticed that in the webinar itself a number of presenters mentioned PEM or PESE, that GET could be harmful or at least not helpful, that NICE recommended against GET, that patients may seem better then relapse, and that many tested interventions showed that 'respecting' symptoms and symptoms...
  6. Haveyoutriedyoga

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    Indeed. Lots of focus on rehabilitation, I'm wondering whether that also covers people who end up being referred to the fatigue services too - if I understand correctly I think the rehabilitation model can be inappropriate for people with ME. I will be interested to see how their modelling...
  7. Haveyoutriedyoga

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    This is the NHS's model for patient numbers who will experience symptoms beyond 12 weeks, and which services they will need/use. Based on ONS stats, published in June so out of date now I don't doubt. Taken from the five point long COVID plan.
  8. Haveyoutriedyoga

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    I was pleased to discover this series of posts, I've only read the first so far. I've been down rabbit holes looking at the origins of the BPSModel and how things got to be the way they are now. I found some useful history in a chapter by Kugelman, in The Body and Psychology (Stam 1998). It...
  9. Haveyoutriedyoga

    United Kingdom: Action for ME (AfME) news

    Could you point me to more information about the Bristol clinic's part here please? I went through the Bristol clinic. Thanks
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