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Thanks @Andy.

Once again I haven't received the email, nor is it in junk. Perhaps it will come tomorrow. There has been a tendency for me not to receive info. I have promoted on social media but hadn't seen the post about images #29. Great idea. Will use in future.

I had a text this morning inviting me to make an appointment for the autumn booster at the community facility. I am 75 so this fits with age policy. I had to have my third vaccine ( my last) in a teaching hospital setting however, a good decision since I had to be rushed into A and E having...

I have read something today which surprised me. I am lying flat in bed dealing with PEM and severe OI after hospital yesterday so memory is appalling but I think I-read somewhere today (in the context of future vaccinations ) that people who have not received the early vaccines will not be...

Thank you to those who have posted on this recently. I had been feeling very unclear about what is happening but another reading of the recent posts should bring me up to speed. There is a lot to take in. After all the work of the last several years and the intense work on the NICE guidelines (...

One of the things that has struck me strongly about having an adverse response to taking the vaccine is how similarly one is judged, to people with ME. The adverse response, like the illness, is ignored and one's experience is invalidated. There seems to be no interest in finding the groups...

A comment from a Consultant Cardiologist in todays daily Express "Comment by Dr Aseem Malhotra - Consultant Cardiologist The development of a number safe and highly effective vaccines during the latter half of the twentieth century is one of modern medicine's greatest achievements, estimated to...

I am concerned about the lack of recognition of serious effects on a significant number of people who took the vaccine. It felt as if there was a deliberate policy of refusing to admit that a negative reaction was a result of the vaccine, and people were strongly encouraged to continue with the...

But those who are affected including the severely affected have not been recognised or supported. Are you saying that you are willing to sacrifice the few to protect the many? edit: Sorry but I am away on holiday with family arriving imminently so will be unable to pursue further discussion if...

I think Sonia Chowdhury today said results would be in line with original schedule i.e. August 2024. Is this over optimistic @Andy. I don't think I misheard but it's possible because all our power went down for a few minutes.

@Simon M -I have seen Dr Bansal. He was based in Surrey and his recent appointments were all zoom. He now work from Spire at Bushey; again all his appointments now are zoom. He seems to be busier than previously. He has a very pleasant manner and an understanding of conditions seen alongside...

A mention of ME/CFS About PolyBio Research Foundation PolyBio Research Foundation is a 501(c)3 transforming how infection-associated chronic conditions like LongCovid, ME/CFS & Post-Treatment Lyme disease are studied, diagnosed, and treated. PolyBio was founded by scientists with...

Moved from the long covid in the media thread Another tweet from an email. @polybioRF Huge news! We received ~1.3M from Balvi ( @VitalikButerin ) for a study of #LongCovid intestinal tissue w/ @MehandruLab , @PutrinoLab & @drmfreire . We will use cutting-edge technologies to identify...

I have a number of tweets arrived by email referring to the NIH turning down a grant application from Putrino Labs. Perhaps someone who tweets can post something clearer @PutrinoLab · 15 Jul I just want everyone to know that @resiapretorius , @GeneticHeartDoc and I had a huddle post-decision...

My vaccines are already out of date, the last one being my third ( Pfizer) in October 2021. I qualify for a second booster on both criteria. I am 75 and at high risk. Mr B has been called and had his fourth on age criteria. I cannot have another vaccine according to my GP which he based on...

Thank you @Wonko. So covid might lead to the elimination of ME: in no way could we be described as the fittest. I don't think that is the solution we've been looking for. Prior infection and the vaccines don't seem to be affecting illness rates as expected with BA. 4 and 5. I keep reading that...

It's very different from what we were told in 2020. Has anyone attempted an explanation for the increasing severity and transmissibility?

John Campbell's recent youtube on the latest variant BA.5 which says that it causes more severe infection which again attacks the lungs rather than the upper respiratory system. What happened to the theory that the virus gets less severe over time?

Ed Argar, Health Minister, has resigned. Wonder if he is involved in the work on ME. https://www.gov.uk/government/people/edward-argar Biography Edward Argar was appointed Minister of State at the Department of Health and Social Care on 10 September 2019. Edward was previously...

I have just been reading thread https://www.s4me.info/threads/funding-of-me-cfs-research-in-the-uk.2533/page-4#post-409541, mentioned in #274 by @CRG, some of which I missed earlier. I think it's very relevant to be thinking what we can do now individually. Grass roots activism if you like. I...