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The topic list does not include what is potentially the single largest definable sub group of PwME in the UK - that is those over the age of 50. Although we don't have sound demographic data on the UK ME/CFS patient population, unless there are very high rates of recovery (i.e ME/CFS is not...

This looks like the Fire Alarm effect. People who deliberately choose to install a Fire Alarm in their homes are very unlikely to have a house fire, simply because they are diligent about the threat from fire and installing an alarm is an integral part of that diligence; meaning cause and...

Of course the Oxford Comma issue has no substance - but that is rather the point, there is no substance coming forward, Government has been in abeyance because of an internal leadership issue for one Party, and Parliament will have been on 'holiday' for 3 full months before it reconvenes after...

Me and My Spoon: https://www.bonhams.com/auctions/16016/lot/2010/

"Those with COVID-19 have been exposed to the coronavirus, whereas those with ME/CFS have a variety of triggers, including the virus that causes mononucleosis." This borders on fallacy. It implies a direct equivalence between a statistically significant population level correlation ( COVID 19...

" Antimodularism and The Entangled Brain Ultimately, my argument is that the existence of brain maps poses a danger to neuroscience because they motivate research practices that reify those maps. In a recent book, The Entangled Brain, Pessoa argues that we cannot understand the brain from the...

Pre Print: The pernicious danger of cortical brain maps Benjamin Yost Hayden The parcellation of the primate cerebral cortex into numbered regions, based on cytoarchitecture, began with the pioneering research of neuroanatomist Kobrinian Brodmann. While the borders between regions have...

There's a UK cultural context which is difficult to translate. In the past this would have been an "endearing piece of British eccentricity" - something over which we UKers* would have laughed at ourselves and incorporated into habitual self deprecation - all very jolly. However many of the...

I may be misunderstanding but as far as I can tell there is no defined sampling, they've simply taken gene associations from three databases and looked for crossovers between ME/CFS (no clarity on diagnostic criteria) and Long COVID. It doesn't look very meaningful to me to look for...

Das et al is discussed here: https://www.s4me.info/threads/genetic-risk-factors-for-me-cfs-identified-using-combinatorial-analysis-2022-das-et-al.29445/#post-436520 and here https://www.s4me.info/threads/blog-new-study-links-14-genes-to-me-cfs.29511/#post-437195

This a Swiss study, based on a Private Nursing service. see 2nd author: Linda Frei, RN, BSc, Private Community Nursing Service ‘Herzenssache’, Zurich, Switzerland. I wonder how applicable this is to the real world in Countries where there are far less resources available for health care.

All Charity Trustee information for England & Wales is available via the Online Register: https://www.gov.uk/find-charity-information https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/3973095/trustees COLIN NEIL BARTON Chair STEPHEN VAUGHAN Trustee DAVID...

"New secretary of state ways of working preferences” New regime at the Dept of H&SC has identified the real priorities: "An email, understood to have been sent to staff at the Department of Health and Social Care and sent on to workers at the UK Health Security Agency (UKHSA), is...

For non UKers - GBN news is a UK Gov licensed free to air broadcaster - albeit with a very low audience ratings.

Merged thread UK:Economy. Long-term ill health now highest *on record* Twitter thread on UK economic data - includes charts relating to long term chronic illness. May have impact on social attitudes to long term ill health and have relevance to advocacy. Also huge number of vacancies in health...

Relevant to some FND research. Shows interoceptive awareness can be learned

The impact of a brief mindfulness training on interoception: A randomized controlled trial Geissy Lainny de Lima-Araujo, Geovan Menezes de Sousa Júnior, Thatiane Mendes, Marcelo Demarzo, Norman Farb, Draulio Barros de Araujo, Maria Bernardete Cordeiro de Sousa Abstract Interoception is a...

Study shows that of those who have MS and a)can, and b) are motivated to, follow an exercise regime (apprx 50% of the initially identified cohort) feel better for doing exercise.

Precision Life Ltd https://find-and-update.company-information.service.gov.uk/company/08687703/filing-history I'm unclear what the practical purpose of this study is, and the repeated reference to Precision Life's "platform" gives the overall sense that this is something of a promo. The study...