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    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    Community Diagnostic Centres : "The creation of CDCs was recommended following Professor Sir Mike Richards’ Review of NHS diagnostics capacity. The recommendation was that NHS organisations across England move to providing diagnostic services in Community Diagnostic Centres (CDCs) and all...
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    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    Is the responsibility for public health in the US not split between Federal Government and the individual States, so while Washington deals with the big stuff it's down to the States to get out health messaging at the citizen level ? Was this not how Tobacco smoking was taken on - ultimately...
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    While Doctors May Hear Patients, Are They Really Listening? — Empathy training can help doctors communicate better with patients, Rosa E. Mino, PhD

    Worth bearing in mind that prior to 1908 no monoglot English speaker had a word for empathy, and even the German term Einfühlung (in-feeling) from which empathy was derived, only appeared in the mid 19thC.* In English the word 'sympathy' covered some of what is currently covered by 'empathy' but...
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    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    I might have been a bit lazy in relying on the worldometer figures. The JHU figures are slightly but consistently higher than the CDC figures: https://covid.cdc.gov/covid-data-tracker/#trends_dailydeaths_select_00 but both show a similar 6 month pattern for the US with COVID deaths hitting a 7...
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    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    A semantic rather than scientific issue, to quote Fauci from 2020: “It really is borderline semantics, to be honest with you,” Fauci said. He added that there could be arguments on either side as to whether the coronavirus outbreak could be described as a pandemic. “I think you could have...
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    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    This seems to be the 'one' study that looked reported pregnancy outcomes: chronic fatigue syndrome and pregnancy https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/216675 A Comparison of Pregnancies That Occur Before and After the Onset of Chronic Fatigue Syndrome 2004...
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    UK: Sign the petition: We need an emergency budget that boosts Universal Credit now. 2022

    https://act.38degrees.org.uk/act/Universal-credit-emergency-budget "The Government must announce an emergency budget that increases Universal Credit immediately. Why is this important? The Government must act NOW to stop millions of people going hungry and falling into poverty. The cost of...
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    Long-term neurologic outcomes of COVID-19, 2022, Al-Aly et al.

    I'm sure that is the right (and very clearly made !) explanation - my comment re: diabetes was just a lazy aside, I intended it as a cautionary: "here's a weird statistical effect that probably doesn't mean anything at all." Apologies all if it looked like I was suggesting there was...
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    Long-term neurologic outcomes of COVID-19, 2022, Al-Aly et al.

    Lots in this. My quick view: 1.Hospitalisation and ICU have cumulative impact on risk of serious disease across the board, orders of magnitude over non hospitalised in most disease categories. 2. Being male is not protective (but note the study limitations) 3. Weird stat of the day - having...
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    Long-term neurologic outcomes of COVID-19, 2022, Al-Aly et al.

    Abstract as open text: Abstract "The neurologic manifestations of acute COVID-19 are well characterized, but a comprehensive evaluation of postacute neurologic sequelae at 1 year has not been undertaken. Here we use the national healthcare databases of the US Department of Veterans Affairs...
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    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    The topic list does not include what is potentially the single largest definable sub group of PwME in the UK - that is those over the age of 50. Although we don't have sound demographic data on the UK ME/CFS patient population, unless there are very high rates of recovery (i.e ME/CFS is not...
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    Associations of fish oil supplementation with incident dementia: Evidence from the UK Biobank cohort study, 2022, Yan Huang et al

    This looks like the Fire Alarm effect. People who deliberately choose to install a Fire Alarm in their homes are very unlikely to have a house fire, simply because they are diligent about the threat from fire and installing an alarm is an integral part of that diligence; meaning cause and...
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    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    Of course the Oxford Comma issue has no substance - but that is rather the point, there is no substance coming forward, Government has been in abeyance because of an internal leadership issue for one Party, and Parliament will have been on 'holiday' for 3 full months before it reconvenes after...
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    “Spoonies: who we are and how to be an ally”

    Me and My Spoon: https://www.bonhams.com/auctions/16016/lot/2010/
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    The key to demystifying long COVID-19 could come from studying another chronic condition : Article: Chicago Tribune: Leonard Jason

    "Those with COVID-19 have been exposed to the coronavirus, whereas those with ME/CFS have a variety of triggers, including the virus that causes mononucleosis." This borders on fallacy. It implies a direct equivalence between a statistically significant population level correlation ( COVID 19...
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    The pernicious danger of cortical brain maps, 2022, Benjamin Yost Hayden

    " Antimodularism and The Entangled Brain Ultimately, my argument is that the existence of brain maps poses a danger to neuroscience because they motivate research practices that reify those maps. In a recent book, The Entangled Brain, Pessoa argues that we cannot understand the brain from the...
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    The pernicious danger of cortical brain maps, 2022, Benjamin Yost Hayden

    Pre Print: The pernicious danger of cortical brain maps Benjamin Yost Hayden The parcellation of the primate cerebral cortex into numbered regions, based on cytoarchitecture, began with the pioneering research of neuroanatomist Kobrinian Brodmann. While the borders between regions have...
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    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    There's a UK cultural context which is difficult to translate. In the past this would have been an "endearing piece of British eccentricity" - something over which we UKers* would have laughed at ourselves and incorporated into habitual self deprecation - all very jolly. However many of the...
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    Bioinformatics and systems biology approach to identify the pathogenetic link of Long COVID and ME/CFS, 2022, Lv et al

    I may be misunderstanding but as far as I can tell there is no defined sampling, they've simply taken gene associations from three databases and looked for crossovers between ME/CFS (no clarity on diagnostic criteria) and Long COVID. It doesn't look very meaningful to me to look for...
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    Do people with ME/CFS and joint hypermobility represent a disease subgroup? An analysis using registry data, 2024, Kathleen Mudie et al

    Das et al is discussed here: https://www.s4me.info/threads/genetic-risk-factors-for-me-cfs-identified-using-combinatorial-analysis-2022-das-et-al.29445/#post-436520 and here https://www.s4me.info/threads/blog-new-study-links-14-genes-to-me-cfs.29511/#post-437195
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