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The NIH Director's Blog talks about the two recent papers on microbiome disruption in ME/CFS: More Clues into ME/CFS Discovered in Gut Microbiome https://directorsblog.nih.gov/2023/02/14/more-clues-into-me-cfs-discovered-in-gut-microbiome/

Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group. Announcement from The Massachusetts ME/CFS and FM Association: Young Adult Support Group for those with ME CFS, FM, Lyme, Long Covid, and Chronic Illness - Feb. 18, 2023...

New blog entry from Bateman Horne Center, posted Feb. 9: Potential Targets for ME/CFS Clinical Trials https://batemanhornecenter.org/potential-targets-for-me-cfs-clinical-trials/

I went to the eventbrite page and saw a notice that this event has been cancelled. It's also marked as cancelled on this website: https://naminycmetro.org/calendar/long-covid-and-mental-health-a-panel-discussion/

#MEAction is hiring an "Activist and Volunteer Coordinator." This is a paid position and can be done remotely. "You can be located anywhere in the United States; #MEAction is entirely virtual." Apply by March 8th 2023. Full details here: https://www.meaction.net/openings/

The Bateman Horne Center posted about this paper and a related paper (Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue symptoms in ME/CFS) on their blog. I posted about it in the "news from organisations" forum but thought...

New blog entry from Bateman Horne Center: News Release: Microbiome Disturbances in ME/CFS https://batemanhornecenter.org/news-release-signature-microbiome-disturbances-in-me-cfs-may-point-to-biomarker-and-treatment-trials/

From an #MEAction email: "Join #MEAction's Board of Directors! We are excited to share this opportunity to become part of our growing board! This is the opportunity to use your leadership and strategy capabilities to support the growth of a grassroots organization fighting for awareness and...

Good catch. I confess that I did not read this whole thing, just skimmed. I got the link somewhere else and just passing it on.

Just FYI, this must be some regional usage of bonked to mean exhausted because I don't recognize it. Zonked, yes, but not bonked. Back to the podcast, I thought this bit was good (added some extra line breaks)

Moved from the Long Covid in the media thread Researchers looking for long COVID symptoms find only 7 https://www.fiercehealthcare.com/providers/researchers-looking-long-covid-symptoms-find-only-seven The study being discussed is here: https://academic.oup.com/ofid/article/10/1/ofac683/6953331

Blog post from Galen Warden about how family and friends can support ME patients. Includes links to research and medical descriptions of ME. https://www.galenwarden.com/post/for-family-and-friends

The NIH has now posted a copy of the newsletter on the resources page of their website: https://www.nih.gov/mecfs/mecfs-resources (it's at the bottom of the page)

Webinar hosted by Solve M.E. and BIO: “Long Covid: What Will It Take To Accelerate Therapeutic Progress?” February 21 @ 10:00 am - 1:00 pm Pacific / 1:00 pm - 4:00 pm Eastern Full announcement here, includes list of speakers...

Blog post by Emily Taylor of Solve M.E.: Key Takeaways from the New Federal Budget https://solvecfs.org/key-takeaways-from-the-new-federal-budget/ Highlights:

Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig Sunday, January 22, 2023, 4 p.m. EST Event is free and will be recorded for later viewing. Register here: https://www.massmecfs.org/news-events/66-sunday-conversations/832-sunday-conversations-jan2023

Adding some extra information to help folks navigate this issue of the Canadian Medical Association Journal. The first paragraph that's quoted is from this section - https://www.cmaj.ca/content/195/2/E80 The second paragraph is from this section (matches link in post) -...

[Moderators - This article is about COVID-19 reinfection. I posted in the Long Covid forum because of the final section that talks about Long Covid. But please move it if it belongs elsewhere.] What doctors wish patients knew about COVID-19 reinfection...

I found this YouTube video about the study, just posted today.

Thanks for posting, @Andy! I saw this info yesterday and didn't have the energy to do a summary or figure out where to put it.