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Geez it's specific I guess when it comes to articles of company but also complicated because of the rather ambiguous umbrella of LC including those who have the ME/CFS type, and perhaps indeed other 'forms' but also those who mightn't have the 'ME/CFS type/types'. And agree that because those...

I'm not sure it is for us to sign rather a requests for psychologists or psychiatrists to sign it. I don't think that this is the 'official BPS (British Psychological Society) one' though - I imagine there are probably a few different ones about (?) with people from different angles etc even...

Yes they seem to have a very specific way of looking at and seeing certain things vs others might on 'the framing'. And it is about time the field was made to define at least the broad different component 'fatigues' that the ambiguous term umbrellas for and leaves apples and oranges and...

So the opposite of what the abstract says as its one line conclusion?

I feel like there needs to be an annual competition now for what you could use this technique to claim to prove - come up with the silliest of possibilities. My starter for ten: I'll recruit 250 schoolkids and ask them to spend 4 hours a week practising music at grade 8 violin level. 200 of...

So out of 272 people they identified as potential participants at the start (most either couldn't due to cardiovascular or clearly said 'I don't think so') it whittled down to 20 who completed to 3-6months A success?!! For all? Based on comparing the ones most attracted to carrying on with it...

Yep I think we've seen a complete split/move happen now where at least some of these journals, and it being much more predominant in certain specialties/subjects, are basically being used as/operating as 'media' rather than 'academic' and the various expectations relating to what is involved...

An example really worth them including so it brings alive what it is like with the egg-timer vs if the 'environment' doesn't change/is as it is A few other possibilities, like pretending to listen (or thinking they are ) but not really internalising and hearing to 'get it' or think 'oh that...

Why is it that you can find many articles of recent years warning people of this particular topic/habit for those with cancer and how people need to perhaps stay well off it because of the harm it can do with insinuation vs not comparing like with like vs giving people dread. (EDIT for sense)...

Firstly it sounds like they are looking at FND diagnoses and not 'FND' given I don't see a bit where they thoroughly checked alternatives. But pretty importantly what was the point of this - I'm not sure what these people think their 'research question' is underneath their methodology. I'm not...

I see your point but their 'to enable recovery success' is untrue. It doesn't, whether it is a patient or someone who decides to deliver a course to them there won't be any 'enabling' or 'recovery'. If she was selling a course entitled 'how to scam vulnerable people with ME/CFS or CFS or...

Agree with your comment. It is so deceitful or incapable of reading and understanding. Whichever of those two is their issue, given the amount of time and clarity in the Nice 2021 guideline that they do not recommend anything that is of the paradigm that ME/CFS is perpetuated by deconditioning...

I would agree in most of this having been similar for me. I can't believe that I just had to remind myself that it is B12 injections for me that made the difference because for a moment I used to remember being at work and so many FRidays having to race home with migraine whilst I could still...

Agreed that organisational responses are particularly important for pwme and need to be done by charities. Even if they do find some way of reaching out to those (and sub-grouping them if you think severe vs moderate vs mild might have different issues) who they are providing the voice for -...

took a while for me to find it: https://www.s4me.info/threads/solvemecfs-initiative-ot-the-role-of-occupational-therapy-in-care-for-me-cfs-presentation.29520/ now going to insert in its place in the comment too

The irony with ME/CFS and PEM (and there is a really good ‘flip the iceberg’ slide in a presentation on how Occupational Therapists can approach/support ME from Amy Mooney...

This 'it was never any cheaper' needs to keep being hammered home, along with the money going in its directions vs no proof of it really significanly helping most patients - many of whom might have had significantly different lives and prospects if the 'standard care' which probably was cheaper...

By one of the few people that, if they are brave enough to do it and lucky enough to survive doing so, will have a chance of being heard rather than various mental justifications people use for writing it off Bystanders are so important in validating patterns by speaking up or them being...

This is literally just the first result in a quick google for whether PANS?PANDAS respondds to ativan, so haven't analysed methods or bias etc PANDAS with catatonia: a case report. Therapeutic response to lorazepam and plasmapheresis, Elia et al (2005) https://pubmed.ncbi.nlm.nih.gov/16239863/...

And PANS/PANDAS is one that every so often I see trying to be flagged as existing by those who I assume there often have experiences of it not being thought of enough as a differential diagnosis, the symptoms listed made me think of that initially too but it doesn't note it being ruled out...