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Yeah @think_that_it_might, as of your question above it’s gonna be otherwise. For all the reasons that have applied historically but mainly to fuck over the LC cohort. Everyone said ‘don’t worry, they’ll be more research at least now with everyone falling out of the work place, dropping like...

Thanks @Ravn. I watched the whole video. I found it immensely enjoyable. The window behind Diane’s head green leaves and soft sunlight. The framing and depth. The calm voices of her and her host carried me through. I can’t comment on the philosophy because it’s beyond me. I did agree that the...

I am sorry to hear this how terrifying! How is your son doing now? I’m just astounded at the hypocrisy of claims made to be saving us from harm through commitment to evidence, at the beginning.

I love this letter! Thanks Dr Alexis Gilbert :hug:

People with ME were claiming the predicted effects of this viruses post acute infection sickness and disability before it had had time to appear. Following SARS there was a decent percentage of survivors who didn’t recover. Post viral complications were assured for some people who lived...

Oh man.

Can I get Novavax in the UK People? My previous jabs wrecked me to the point I am terrified to get another one.

Absolute appropriation.

Oof. That’s bad.

Good spot! That video though :slugish:

Yes. Friends in high places. But far fewer than before or Cochrane would not be in the difficulties it finds itself in now. It seems like someone in a position of authority at Cochrane must of signed off on the decision to refuse our complaint entirely, rather than going for the more...

Yes. They may have over played their hand here. The establishment may view us as subhuman objects to be experimented upon. But Cochrane is no longer as shiny as it used to be. This latest move looks particularly grubby.

So interesting to look at the biological findings of differences the between men and women here. I was really interested by Decode MEs results, when they returned the preliminary results showing how the symptom patterns taken from averages diverged so much. I often wonder too about trans...

I don’t have the capacity to understand this study. From first glance I wonder is it saying that circulating mtDNA does cause fatigue? Or is it still too early to say that? Also ‘psychobiologic’, does that have a variety of meanings, because I just looked it up and the definition was all about...

I think the trouble is most people do tend to think of themselves as empathetic, which may or may not translate into better behaviour or they think empathy has no value. But they can fake having it quite easily. Empathy is very noticeably in short supply in quite a few areas of medicine and I...

Yes @rvallee. Every word. Sly as fuck. Oh dear we’ve been neglecting the men. Poor guy no diagnosis! Too proud and full of manliness. Here you go mate, here’s a great big steaming pile of “C.F.S” research study for you! I except you feel less neglected and overlooked now don’t you? No? Well...

Thanks @Trish. Have they done a letter to the UK health authorities as well as the CDC, I couldn’t find but maybe just because my heads spinning.

US or UK?

I don’t think that we are powerless. I think that Cochrane perceives no obligation to respond to us upon points raised. Cochrane don’t have a self interested reason to value our lives or our quality of life. They have in fact damaged our chances in this respect. But the consequences are for us...

So sad to hear this. RIP Ady. :emoji_bouquet: