After some criticism on twitter BBC changed the headline of their recent article from Chronic Fatigue Syndrome: Protestors Call for specialist ME...
I’m sure there must already exist some activity scoring questionnaire and people could be asked to fill it out and selected if they fit into the...
Statistic from new report, only 3.6% of those applying for disability benefits in Switzerland with long covid were accepted. According to the CH...
Millions missing protests infront of parliament in Bern Switzerland yesterday, featuring some wonderful people (and my shoes) I chatgpt...
The Sick times is hiring two part time writers, and accepting pitches for Commentary/analysis pieces on Long Covid. 400-1200$ is paid per piece....
This is going to sound horrible, but people in rich families getting ME/CFS can really change a lot for the average patient. As WE&ME shows,...
Hi @EmmaS302, thank you for sharing this. Unless I missed it, I think something useful to say would be to give members here an estimate of how...
I’ve shared this before but I think it is relevant in this thread...
Thanks for the really interesting and well-thought reponses Kitty and Jonathan. As for that quote you literally made me laugh out loud even...
I often hear the claim that the reason ME/CFS is neglected psychologised etc. is that we don’t have a biomarker for the disease. In my opinion, it...
Republicans blocking major sources of funding to “Cancer Moonshot”...
Atleast in my personal illness experience, when completely bedridden, no sound or light input, only liquid food etc. No confounding factors....
I think any model that explains cognitive PEM could explain sensory hypersensitivity through that same framework.
Yes, criteria for a plausible model becomes a whole lot more difficult if you consider the fact ME/CFS could be a collection of similar or related...
Another thing is the model needs to be able to explain how some people within the same disease category, can live a near normal life, while others...
I love the idea. Just as a thought, would a theory be false if it assumed we needed a trigger that encompasses immune activation from...
I wonder if trying to get Nath and Walitt to attend these kind of things would help them “get it” or if it is already a “lost cause”.
Is it a reply to criticisms they have faced which they judge as “unfair”, or are they brainwashed by the narrative that ME organisations are...
have they ever seen/read about someone with very severe ME. This just makes me sad :(
Hi, I couldn’t find a general thread to post this so I’m making a new thread. A small but in my opinion cool way to increase advoacy, an...
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