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What Is Known? Endothelial dysfunction (ED) is a consequence of acute SARS-CoV-2 infection and may lead to Post-COVID syndrome (PCS) symptoms. Patients with PCS show elevated inflammation and endothelial dysfunction markers. Spike proteins can persist for up to 12 months post-infection...

PRESS RELEASE PrecisionLife and Metrodora Institute share first insights with ME/CFS, Long COVID participants in MetX research study MetX funded by $1M grant from Metrodora Foundation to accelerate research for complex multisystem disorders SALT LAKE CITY, UT and OXFORD, UK – 18 September 2024...

Verbatim transcript of Prof. Bhupesh Prusty’s presentation to the Fatigatio E.V Research Seminar – 14th Sept. 2024 https://docs.google.com/document/d/1T79bGDR1w31zHhS39AXz3wDyhlmvwadg/mobilebasic

Summary thread: https://threadreaderapp.com/thread/1833934571114823712.html

New press release from Spain: A protocol for studying chronic fatigue syndrome is established in a UPV/EHU PhD thesis - campusa-magazine - UPV/EHU https://www.ehu.eus/en/web/campusa-magazine/-/a-protocol-for-studying-chronic-fatigue-syndrome-is-established-in-a-upv-ehu-phd-thesis

Dutch academic post-covid centres to open in November. Go to (Google translation fron Dutch to English), https://www-nfu-nl.translate.goog/actueel/eerste-post-covid-expertisecentra-binnenkort-open?_x_tr_sl=nl&_x_tr_tl=en&_x_tr_hl=en

Results from the RECOVER Long Covid Pediatric Study https://solvecfs.org/results-from-the-recover-long-covid-pediatric-study/

"Everybody has a story" - a talk with Stuart Murdoch September 20, 2024 In a recent InterAction article, we spoke to Scottish singer-songwriter Stuart Murdoch about his journey with ME, which he shares in his new book, Nobody's Empire. Speed read Stuart Murdoch has lived with ME for over 30...

"Everybody has a story" - a talk with Stuart Murdoch September 20, 2024 In a recent InterAction article, we spoke to Scottish singer-songwriter Stuart Murdoch about his journey with ME, which he shares in his new book, Nobody's Empire. Speed read Stuart Murdoch has lived with ME for over 30...

https://etd.ohiolink.edu/acprod/odb_etd/etd/r/1501/10?p10_accession_num=osu1717254322674078 Cox, B. S. (2024). Role for EBV- & HHV-6A-dUTPases on Immune Dysfunction in ME/CFS and other Chronic Multi-Symptom Illnesses [Doctoral dissertation, Ohio State University]. OhioLINK Electronic Theses and...

https://link.springer.com/article/10.1007/s15010-024-02394-8 Long/post-COVID in children and adolescents: symptom onset and recovery after one year based on healthcare records in Germany Research Open access Published: 16 September 2024 (2024) Franz Ehm, Falko Tesch, Simone Menzer...

Mods can of course feel free to post this elsewhere if they want: Long COVID patient in Canada requests medical assistance in dying due to lack of health and social care. https://www.wsws.org/en/articles/2024/09/18/xyco-s18.html

Disability Insurance For Chronic Illness Institute for Neuro-Immune Medicine 6.38K subscribers Learn more about Dabdoub Law Firm. https://www.longtermdisability.net Haylie Pomroy is joined by Edward Dabdoub, Founding Attorney of Dabdoub Law Firm. As an expert in disability insurance, he...

Just to add: in some cases I know of they re-diagnosed people as having fibromyalgia.

R&D for long COVID is collapsing Public and private funding is lacking, scrambling opportunities to develop treatments by Rowan Walrath September 18, 2024 | A version of this story appeared in Volume 102, Issue 30...

A practical problem currently is many rheumatologists currently seem to tend to see fibromyalgia and ME/CFS as two sides of the same coin and see patients through a fibromyalgia lens recommending exercise.

FYI @ME/CFS Skeptic

I remember an advocate in Manchester complaining that there were four sympathetic consultant physicians there seeing ME patients in the late 1990s and early 2000s. But once the CFS/ME services were set up they saw/were allowed see few or no ME patients.