An ethical minefield, I think. Much better for such data collection to be done systematically by researchers.
This is the relevant rule, with the key part underlined: Rule 2: Privacy a) Careful disclosure and discussion of others' personal information...
From the supplementary material File 1 SF-36 PF scores in the 2 groups both showed something interesting - it looks like the small proportion of...
She was paid an honorarium in the first year or 2, then eventually after the long hiatus she got them to pay her some more in 2024. I guess it's...
Not sure whether this has been raised already. The results on CSF tests by Baraniuk might give some directions to follow up in blood:...
I keep coming back to the passage in Martin Rücker's excellent article where he reveals the decision making at Cochrane that led to cancellation...
We already referenced it in our harms letter to Cochrane in March 2024. They clearly ignored it along with all the other evidence we provided.
I was a bit puzzzled by it, but then I thought of it this way. MEAction is for some pwME probably their only ME/CFS community, and things like...
Absolutely that's what they have done. Avoiding controversy from their point of view is keeping their own senior people like Paul Garner, Paul...
All the updates and the letters between the S4ME committee and Cochrane are published in order on this thread: S4ME: 2023 Open Letter to Cochrane...
I've quoted your post onto the factsheet thread.
Petition now at 14,900, and some powerful heartfelt comments being added. I wish those GET supporters who persuaded Cochrane to act as they have,...
I have just spotted that the Editorial note attached to the 2024 version of the Larun review has been edited today. Luckily I kept a copy of the...
A huge thank you to him for the article. He has really shown up well just how badly Cochrane have behaved, with more care for themselves than for...
Can someone clarify for me the name of the publication of the German article and what sort of readership it has?
I get it sometimes still (age 75). Worst instance recently on trying a newly prescribed medication that set of bad restless legs lasting 8 hours....
I think this section is key - following the masks controversy where the editor had to make a public apology: "According to people involved, it...
Some off topic posts have been moved here
I think that's an example where the target group has been excluded, so nothing can be deduced about them. How about if there is a mix of humans,...
Edit: I haven't been able to read all the discussion. The PACE trial used the Oxford criteria for CFS, which only requires chronic disabling...
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