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Can't read much at the moment but is this the first time anyone involved in any of this hocus pocus has stated what 'recovery' means? (Bottom of clip above.) I thought it was some undefinable, vague state that nobody understands. Sorry if this is already discussed.

The letter from the 'leading experts' implies that the CBT used for ME patients is the same as is used for cancer and MS this is not true. How can they still be getting away with this. As we all know one type is to help cope with a debilitating illness and the other is to get rid of 'false...

How refreshing.

Fantastic @Cheesus !! Well done! And well done for following it up. :emoji_champagne:

Joined and upvoted. Well done @Adam pwme and great comment. Can't say I understand it . . . but I'm keeping my fingers crossed.

I think I probably down loaded it from the website - ie same place at the link above.

Yes I presume so. I've had the first one - dated October 2017 - since 10th July 2017, which is a bit strange.

Well i can’t tell from my saved info so I put the title into google and it brought up a link to a NICE web page - https://www.nice.org.uk/guidance/cg53/documents/stakeholder-list-3 It is a little different to the one I posted above - haven’t looked at the whole thing yet. Presumably they...

Ok will try to work it out. I think I downloaded it around the time that the stakeholders comments was published. I'll see if I can narrow it down.

I found this in my folder of things to look at when I can (big bloody folder). The only thing is I can't exactly remember where I got it. It says 2017 on it. Is this in an ok form for people to read?

Only read the first section. What a hero. Crying my eyes out. Needed to hear something positive today. Haven't even reached the research yet - might need a bit more brain for that. I've been following him on Twitter and I knew he got it but I didn't realise how much! For all the shite we have to...

I’ve just made a complete mess of commenting on the ME Facebook page about issues raised here. I feel bad that I didn’t give @Valentijn credit for this info but writing is super hard for me and it all became too much. Bloody Facebook I hate it. Also would you want your name mentioned elsewhere...

@Valentijn I’m afraid there are some comments from the Royal College of General Practitioners in the stakeholders consultation - bottom of page 89 down as RCGP. They answered ‘No’ to the question ‘Do you agree with the proposal not to update the guideline?’ A taster of their reasons - “The...

A little further down - 2.17 Prof Malcolm Hooper drew Prof Baker’s attention to his paper on ME. Prof Baker said he had received it. Prof Hooper said that the paper did not include a recent proposal to designate ME a somatic disorder. That needed to be stopped. Prof Baker commented that ME/CFS...

Link to minutes of meeting with Professor Mark Baker, Director of Guidelines, NICE http://www.forward-me.org.uk/31st%20October2017.htm

Brilliant and clear comment by Graham McPhee. In reply to the usual 'give Psych a chance there is no shame in mental illness' argument.

I’m confused (whats new?). They had a meeting on the 17th October and another on the 31st October? The link above says their next meeting is on the 31st October 2018. I thought they were changing how they work and only meeting occasionally. Or disbanding or something . . . Sorry no brain at all...

Thank you to Russell Fleming who did the transcript on behalf of the MEA.

Thank you @Sly Saint ! Great quotes. No. 2 (ahem) made me laugh out loud which wasn't something I imagined I would be doing reading this thread. Unbelievable tripe. Can't understand the quote thing at the moment so I'll just copy it below- so here are a couple of quotes " ten years ago people...

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