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I don't mind the far out stuff. One of the jots of philosophy is that philosophers seem to think about the world in abstract ways that other people don't. I've found it to be wonderful mind candy- a joy to read an think about even if it's not (or maybe especially because it's not) always...

Please don't expend energy on my behalf. I will look up John Worrall and go from there. I just need a bit of thread I can catch hold of through the maze.

Thank you so much! Don't expend any energy on this that you don't have. I will look up Popper. I know what you mean about the internal filing system. I've recently started keeping a reading journal because my internal system is no longer functional.

Well, I mostly meant Peter T, but if you have reading recommendations I'd like to hear those too.

I'm curious about your philosophy of science background? It's a subject I find fascinating. Who do you recommend reading?

Cromolyn is usually dosed before meals on an empty stomach. For example, my doctor has me take it four times a day (before breakfast, lunch and dinner, and bedtime). It's a bit of a pain because I can't eat for an hour beforehand and a half hour after each dose. In this dosing regimen, it...

And the information that is there is very vague and generic. He lists testing for gut dysbiosis or mitochondrial dysfunction, but doesn't say what tests exactly he runs to determine this. As far as I know, there aren't a lot of tests that determine this reliably in a clinical setting. If you...

It's never been enough for me, even when I was so sick I could barely make it to the toilet. I keep thinking to myself that if I rested more, I wouldn't be severe now. I'm partly struggling to make sense of my own experience here. My illness has been progressive for 9 years, no matter what...

People actually do this?! I would go stir crazy. I think the phrasing of "too much rest" is unfortunate, given our history of GET and the challenges we still face getting this message out. Now, I'm just extrapolating from my own experience, but I am constantly struggle to rest enough. It's...

It's the following sentence that I find disturbing. Quote follows: Glass, who had ME/CFS and is now in remission, noted of the condition, “It’s so incredibly difficult because when you rest too much, you get worse, and then when you do too much, even a tiny bit too much, you get worse, and then...

This is very interesting to hear. For me, reducing OI does reduce (but not eliminate) PEM. It doesn't make activities innocuous, but it certainly makes them less harmful. I wear compression stockings and a waist squeezer when I need to be vertical and they help a little bit. If I'm not...

I have allergies that make my eyelids swell up and produce huge bags under the eyes. Giving myself a lymphatic facial massage makes them de-puff ever so slightly But they fill right back up again since I'm allergic to everything, sometimes it seems like even my own skin secretions. It...

I find waist compression makes me a tiny bit better, but I have to be well enough to be vertical in the first place for it to be useful.

I think this is an overly strong response for frightened and grieving parents. I'm a bit of an aviation buff and one of the things I like best about aviation isn't the planes, but the crew resource management. That is looking at why people make the mistakes they do and fixing them, rather...

I don't think that avoiding PEM is a realistic goal when one is severe. Now, maybe I'm saying this because I'm just not good enough at pacing, but in 11 years I've never been able to avoid PEM for any length of time. I just try to give myself enough time to recover from it before starting the...

I want to know exactly which part of the protocol checks out and why, biochemically speaking.

This is my main take away as well and it gives me a great deal of hope, both that I might recover one day if I can find the right path and that when/if I do there won't be any permanent damage. I hope my comments about caffeine and chocolate did not appear as an attack or criticism. I really...

I really am surprised and gratified how much difference caffeine makes for me. English breakfast tea is an important part of my medication regimen, and definitely the most enjoyable part. I wish I could stuff myself with chocolate covered espresso beans...

I've ordered it from my library.

I also wonder about the people who are not committing deliberate fraud, but who are unaware of their true diagnosis and participate in good faith, but are incorrect.