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Hey everyone, I've been thinking a lot recently about fundraising, specifically for ME research. I suppose I'm thinking along the lines of - there are so many things I want to do that I can't, because of ME/CFS. At the moment I use my limited energy to do tiny amounts of the things I want...

Seconded

Sounds like great news!

Hello, I spend a lot of time (probably the majority of my waking time) sitting at my desk in front of my computer. Playing games, watching programs or working. I have a nice enough office chair, but I wonder if I could find something better. I tend to sit (like right now) quite upright with my...

Hahahaha I read this as well, I thought about posting it. I enjoyed the article. Your TLDR is very good. Obviously I couldn't help but read it from the perspective of having ME and being angry about psychologisation of our illness, and angry about people making assertions about what's wrong with...

Do you know what the medications that Dr Claire Taylor (depending on the patient obviously) prescribes are? Is it things from that big group of things some people try (e.g LDN, Ability, Mestinon, probably a load more I've forgotten)

Hi all, does anyone know of anywhere in or close to London, where it's possible to get the following blood tests done: (possibly known as a Lymphocyte Subset panel / test, or something similar) My medical knowledge is minimal so hopefully I haven't garbled this list below: Lymphocyte T (or...

I've just made donations of £50 each to the following fundraisers: 1) Fluge & Mella Norway Daratumumab trial - https://www.me-foreningen.no/om-oss/stott-me-foreningen/me-fondet/english-me-fund/ 2) Chris Ponting ME/CFS Research Lab, University of Edinburgh -...

Is anyone able to work out where they're at now with fundraising? It's so confusing trying to work it out.

Yea it's an amazing article.

Completely anecdotally - I read an article I think in The New Yorker that made the claim that all mammals seem to have roughly the same average total number of heartbeats over their whole lifespan. So any being with a higher average heart rate would have a shorter overall life, lower average...

Do you have a link to this video? I can't speak Norwegian but I'm curious to watch it, and the embedded video won't play in my browser. I do have a Facebook account.

Aha! Thanks for clarifying. You are a native Norwegian speaker right? I don't speak even a tiny bit!

That's amazing Joan! That's about 49,000 Norwegian Krone, which is a big chunk of the remaining amount they need to raise (about 170,000 Krone), according to this page - https://innsamling360.no/innsamling/vis/195?&returnUrl=%2FInnsamling%2F

Sounds dreamy!

Some kind of debate in UK parliament today on ME. Tabled by Tessa Munt MP. 430pm - 530pm UK time https://whatson.parliament.uk/event/cal53589

Whoah (at the idea of using a Chat GPT treatment protocol... and at that list of medications it came up with!)...eek.

I've just started watching this video and it looks really interesting, and relevant to a lot of discussions we have here on S4ME regarding unscientific beliefs regarding trauma and the body. The speaker is a professor of clinical psychology from the USA called George Bonanno. This is the blurb...

Yea, it looks like that's correct @OrganicChilli From their crowdfunding page (linked to on their Facebook page that you linked to), it looks like they were 250,000 NOK away from the total, and of that 250,000 they have now raised 32,046 NOK. which would mean they are around 218,000 NOK from...

You're a star @Joan Crawford ! More thank £3k - that's amazing. Well done!