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  1. svetoslav80

    PEM: A thread for sharing your experience of post-exertional malaise

    I might be a bit out of topic but I want to share that, although my fatigue only gets worse with time, a few years ago I stopped experiencing PEM, which is great (is there someone like me?). Otherwise, when I used to experience PEM, it started about 1 to 2 hours after physical or cognitive...
  2. svetoslav80

    What do we mean by a diagnosis like ME/CFS?

    I just want to say that I went through no-PEM to PEM to (again) no-PEM phases in the course of my illness. Currently my fatigue is very bad but (fortunately) I don't experience PEM. Food for thought whether PEM must be included as a requirement for diagnosis of CFS.
  3. svetoslav80

    OpenAi's new ChatGPT

    This AI is like the computer in Blake's 7.
  4. svetoslav80

    Repetitive strain injury (RSI)

    Here is some extremely useful software for people with rsi on both hands: lipsurf (chrome extension) - navigate through pages by voice (don't overdo thought because too much talking may cause PEM) murgee auto keyboard - auto presses keyboard key at specified interval (I use it for facebook...
  5. svetoslav80

    What diagnosis do you apply for disability with?

    My story includes alcohol abuse so probably not a good advertisement for the community. If this is not a problem then I don't mind.
  6. svetoslav80

    What diagnosis do you apply for disability with?

    I don't know, I doubt it but I should probably make a research.
  7. svetoslav80

    What diagnosis do you apply for disability with?

    I'm applying for disability for the first time now and since I have never been diagnosed with CFS or something similar, I apply with the diagnose my psychiatrist gave me which is borderline personality disorder. They gave me 50-70% disability but for 1 year only, I need to apply every year.
  8. svetoslav80

    Covid-19 vaccination experiences

    Here in Bulgaria almost no one wants to get vaccinated (at present only 10% of the people are). So luckily for the rest of us there is a big choice of vaccines - astra zeneca, pfizer and moderna. I got vaccinated with Pfizer and haven't had any significant problems. Only sore arm after the first...
  9. svetoslav80

    Repetitive strain injury (RSI)

    I wish I was aware of this threat earlier: I spend 14-15 hours a day lying in my bed, mousing, so I developed repetitive strain injury at my right arm and biceps. I can no longer use it so I'm mousing with my left hand now. I also bought a trackball so I can switch from mouse to trackball, but...
  10. svetoslav80

    A randomised, placebo-controlled, double-blinded trial of duloxetine in the treatment of general fatigue in CFS, 2014, Arnold et al. Cymbalta

    I tried stopping venlafaxine abruptly and had an awful discontinuation syndrome so I had to reinstate some of the dose. Interestingly I stopped duloxetine abruptly as well and didn't have any problems. As far as I know these drugs have similar structure so (just a suggestion) I might have...
  11. svetoslav80

    Barely able to think after psychiatry visit.

    Thank you for this information. Probably it wasn't any of the medications , but the environment was too tense for me (too many people at one place and I wasn't in the best relationships with one of the doctors).
  12. svetoslav80

    Barely able to think after psychiatry visit.

    I was for 19 days in psychiatry on occasions I don't want to mention and now I'm barely able to think. I can still walk long distances but I can barely play my favorite game for 10-15 minutes and my brain stops. I was injected with haloperidol 5 mg (2-0-2) and promethazine (2-0-2). I don't know...
  13. svetoslav80

    Coronavirus - worldwide spread and control

    They announced a state of emergency in Bulgaria today. So, I'm staying home in bed and not going anywhere. Oh wait ...
  14. svetoslav80

    3 day fasting to reset immune system

    Yes, I've fasted for 8 days. It didn't help my issues - chronic bacterial prostatitis and cfs. I don't think it cures anything, neither that it resets the immune system. I also know a guy who tried to cure cancer by water fasting and almost killed himself. He was finally saved after surgery and...
  15. svetoslav80

    Stroke

    I should have updated this thread a long ago but here it is: one of the nurses who first saw the results of the scan misled me that I have certainly had a stroke in the past. This might or might not be true. As far as I understand, the finding could either be ischemic stroke or Virchow–Robin...
  16. svetoslav80

    This woman with [fibromyalgia] wants to end her life, but can't get assisted death

    The question is who judges which condition is terrible and incurable. A doctor? Then what happens if the patient wants to end their life because of some unrecognized condition (like CFS). I find it humiliating that somebody decides for you if you have a right to end your own life. Everybody...
  17. svetoslav80

    Overdosed with coffee - crashed really badly.

    I'm on antidepressants for 4 months now and I'm crashing just as often and as bad as before, only without the feeling of anxiety. What an improvement.
  18. svetoslav80

    Overdosed with coffee - crashed really badly.

    Someone knows a dumber method for crashing?
  19. svetoslav80

    Use of stimulants for ME/CFS

    OK on the second thought modafinil doesn't help for my fatigue, neither boosts my energy. It clears my brain fog though, which is wonderful, and I "live in the moment", and become very concentrated and chatty. However, this happens only if I take a dose of about 600-800 mg, which is double of...
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