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  1. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    He does come across as sincere. But he is unaware of the complexity of the illness and current research, and is misguided in his alignment with the CDC.
  2. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    Doctors often say treatment options are limited for ME/CFS when they are ignorant of the many treatment options of the component illnesses.
  3. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    ME/CFS is an umbrella term for a multi-system illness with at least ten separate illnesses. Those illnesses show up in non-ME/CFS patients also, where they have treatment protocols and evidence-based medicine. Here are some examples: Autoimmunity: treat the separate autoimmune illness and...
  4. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    What does Kaiser expect from once-a-year appointments? Kaiser provided no MECFS treatment within their network plan. Patients suffered severely. After multiple reconsiderations and appeals that patients made while ill -- an arduous path -- the patients were finally referred to the Stanford...
  5. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    You mean there are no treatment protocols for ME/CFS based on current science? Or none that CDC mentions on their website?
  6. Joyful Warrior

    Trial By Error: Kaiser Permanente Changes Course

    What drove Kaiser to action, IMO, was webdog working internally along with ME/CFS patients slamming Kaiser hard publicly in Social Media (check Twitter). Kaiser is extremely sensitive about its presence in Social Media, and patients who'd received no care were coming down hard on KP (rightly...
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