I was asked about my personal experience. I said that GET doesn’t work and backed it up with the survey that we had already submitted to Peter...
I was told during the interview that my views on GET and CBT would be seen as a conflict of interest. Followed by a lot of questions about how I...
I did not declare any COI.
Not that I am a doctor but I was interviewed for the lay member position and was told that my stance on GET and CBT is a conflict of interests. I...
Anbu was on my table at the scoping meeting. I am horrified that he’s on the committee. There was a big argument between him and myself plus Tony...
We had a clinical lead of one of the paediatric CFS/ME specialist services in our group. I will refer to them as they, to avoid he or she, since...
I think we could start by looking at websites. There is often so much rubbish on there that I wonder if they are actually being serious. The...
Being labelled with something else and/or dumped is actually the better option. You can also get accused of not engaging, not following what they...
Thank you
It’s all psychology based. Been through the admissions “treatment” and have nothing positive to say.
If you want to learn more about dosage, circadian rhythm dosing, pumps etc, then the best place to read through is CAHISUS on Facebook. The posts...
Well, UCLH run their paediatric CFS (never call it or diagnose anyone with ME) as MUS/CFS. Here’s a picture from the waiting room.
I also attended the meeting (you might have spotted me as the 6ft tall woman with a scarf on her head! Lol). I was in the group that moved out of...
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