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    MEAction 2021 MECFS researchers video with R Davis,Prusty

    Quite a few of us shared our files with the results from 23andme with @Valentijn. She put together in tabels, the SNPs that were discussed at that time. I´ll see if I can get in contact with her, or if anyone know how to do that, it would be great.
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    MEAction 2021 MECFS researchers video with R Davis,Prusty

    Maybe the results from 23andme tests could be useful. I just checked my test results from about 10 years ago, and there were several results from different IDO2 SNPs. At that time many of us had the test, so if we could get the actual rs number-s, and they were analyzed in the test, we could...
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    Sweden - RME news

    Merged thread Online conference on ME October 14th 2020 October, 14th at 1 pm, the annual conference on ME by Swedish RME will take place. This year it´s virtual, but will be recorded as usual, and available at their website after the conference. The program...
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    Sweden: Seminar for doctors on how to distinguish ME from chronic fatigue/burnout

    'How to reduce everyday tiredness 3) Exercise. Physical activity is energising ' Sigh. There was no reservation for ME/CFS patients as far as I could see.
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    'Lab' testing - could dogs smell ME/CFS?

    They can. It was on Scandinavian TV some days ago. The trained dogs had found arrivals at the International airport with COVID 19. Testing for the virus confirmed ongoing infections. This is big, isn´t it? @JES, maybe you can tell us more?
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    'Lab' testing - could dogs smell ME/CFS?

    Trained dogs are already used at the airport of Helsinki, Finland. https://www.forbes.com/sites/jemimamcevoy/2020/09/22/finland-using-dogs-in-helsinki-airport-to-sniff-out-covid-19/#14e452b57331
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    e-coli infection and leaky gut

    Best wishes @Graham. So sorry for what you are going through. I´d like to highlight this study by Dr. M. Maes et.al as he has been working quite a lot with the gut issues in ME/CFS. There are more studies to check up if you´d be interested. I guess you know about him already. Though, I couldn´t...
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    Epigenetic Modifications and Glucocorticoid Sensitivity in ME/CFS, 2017, de Vega, Vernon et al

    This study by Wilfred De Vega et. al. has been discussed before on the forums, I think, but here it is again https://pubmed.ncbi.nlm.nih.gov/28231836/ . 2017 Feb 23;10(1):11. doi: 10.1186/s12920-017-0248-3. Epigenetic Modifications and Glucocorticoid Sensitivity in Myalgic...
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    Lyme: another sad story, but a new app for areas with infected ticks

    BBC interview with a Lyme victim who has a story that too many of us recognize. It also triggered ME/CFS in her case. The good news is that there is, or will be, an app where people can find out if infected ticks have been found in certain places or areas. I´d be very interested in this app...
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    Dysbiotic microbiota in autistic children and their mothers: persistence of fungal & bacterial wall-deficient L-form variants in blood, 2019, Markova

    A new study showed that maternal anemia was tied to ADHD and autism. Maybe a bit off topic to the thread, but I think the message is very important https://news.ki.se/early-maternal-anemia-tied-to-intellectual-disability-adhd-and-autism?_ga=2.150433974.1058911018.1569843632-430219829.1569843632
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    FDA Clears Marketing for "Modified Two-Tiered" Lyme Disease Tests

    I assume the following should have it´s own thread, if there isn´t one already. It could also be interesting to discuss this new test and compare it with the one that you @MeSci links to. About the test: " The concept is that we are no longer looking for the bacteria but for its obligatory...
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    Fecal transplants in ME/CFS

    That was what my ME-doctor told me when I asked about it as a possible treatment. He warned me.
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    News from Scandinavia

    I have talked to some people who also developed ME after the Pandemrix vaccination. It is all too sad. This article is worth reading in the discussions about vaccines...
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    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Do you remember what brand of cortisone and what dose you got?
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    News from Scandinavia

    @mango, thank you for informing us about what has happened in RME. I´m really sorry. I could never believe this would happen as RME for many years have had excellent annual conferences (video-recorded as many of you know) with world-renown speechers like Maureen Hansen, Jo Cambridge, Drs. Fluge...
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    New Scientist: Probiotics are mostly useless and can actually hurt you

    It was clearly some time since you posted this but I just wanted to ask you if you have investigated if you belong to those who have a genetic defect causing a lack of the enzyme DAO? If not, It could be worth reading up on it. I know a guy whose life totally changed after he had found out about...
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    ME/CFS International Research Symposium, March 2019, Australia

    Luckily you don´t have to have twitter to read tweets. Just google twitter and a name or account and you´ll get there. I think what was missing were talks containing information about unpublished facts or trials.
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    ME/CFS International Research Symposium, March 2019, Australia

    I haven´t seen this tweet posted before, but I might have missed it. Great that we´ll have a second chance to watch the conference.
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    Anyone experience a numb feeling between toes on the sole side of feet?

    Could it be that you have Morton´s neuroma? You´ll find a lot about it if you google the name of the condition.
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    News from Scandinavia

    I´m not sure that the debate is hurting ME-patients in Sweden in the long run as more and more people are interested in what the "so far unknown" disease is about. I think we have passed the tipping point where the mass of knowledge is more serious than the opposite. There have been lots of good...
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