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I think the process is now unstoppable but whether there's any options to influence outcome measurements that are used e.g. FUNCAP @PhysiosforME Do you have any input?

My understanding is that Janet Scott is trying to create a four nation clinical trial network. I don't know if this is for trials of antihistamines and other trendy stuff. There are clinicians in each country involved but I don't know who? I think she already has funding for the platform

@Andy do you know if there will be any presentations of DecodeME at conferences this year? I don't mean Investinme

AI Oestrogens (estrogens) play a significant role in regulating blood volume, primarily by increasing plasma volume, which leads to overall higher blood volume, especially during the menstrual cycle, pregnancy, and with estrogen therapy . This expansion helps manage blood pressure, and studies...

https://openheart.bmj.com/content/3/1/e000381 Newton's study from 2016 on plasma volume, heart size etc

AI Common Misconception: While "normal saline" for intravenous use is 0.9% salt (approximately 9 grams per liter), the natural concentration of sodium in blood plasma is actually closer to 0.6%.

@Colleen Steckel . I don't understand why IV saline ONLY once a week would make a difference? What is the hypothetical mechanism?

I bought Fiskars nail scissors. Worth the money.

The gut has plenty of immune cells and is highly innervated so is it a neuro immune organ rather than just a digestion tube?

@EndME thanks for reminding us what went out the window!

@Andy @Simon M Thanks

Quick questions does anybody know if there was a table with number of participants in each part of UK ? IAM looking for number in N Ireland

@Kitty thank you for clearing the fog around wheelchair charging!

Ok so can you use a timer with a float charger? I have a downstairs wheelchair but if I put it to charge overnight I'm not downstairs again for 12 to 14 hours. The manual says to charge overnight and the seller told me that there is a cut out. Seller did have a biomedical engineering degree!

Can I ask how often you charge your electric wheelchair? Do you charge it overnight? What type of batteries do you use?

We need to get away from the concept of energy and use the concept of stamina

@petrichor good find

@Jonathan Edwards Once again thank you for all the amazing work that you do in our behalf. Do you know if any lupus centers in the UK are interested by the DecodeME results?

My nephew has neuropathic pain after a thoracotomy and is under the care of pain consultant who is in anesthetist and he is gradually reducing opiates. My nephew experiences bone pain about 1 hour before the next opiate dose, which is recognised as daily withdrawal symptoms.

My mum was on myco phenolate for two years for temporal arteritis and during this period her irritable bowel syndrome disappeared only to reappear 6 weeks after stopping mycophenolate.