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did not click. shouldn't the goal to be to do the right thing instead of to be trusted? us lawyers did soul searching in the 1980s/ they wanted a campaign to burnish their image.

> Further the cognitive impairments seem to reflect more global issues of processing rather the focal or specific issues you see in such as a stroke. This presumably is a result of something impacting at the bulk of the cerebral cortical functioning though in at least very severe ME it is...

https://www.hhs.gov/about/news/2024/04/26/hhs-issues-new-rule-strengthen-nondiscrimination-protections-advance-civil-rights-health-care.html it says you can act on your rights [idk where the details are and cannot read entire thing for health reasons]. i don't trust anything but i wonder if it...

cannot read thread so deletable if redundant. sounds like adhesion contract. would be good if charities helped pwme [incl me] fight back using law. agree as orwellian synonym of coercion is rife in us.

does this have transcripts? i would like to send the link to my doctor in the hopes that she might glance at it, as i am in an extremely dangerous position with her for reasons i do not understand. but i have no speakers.

i have to sleep MANY hours, and have to take medicine to get to sleep and also back to sleep. this is because i need restorative sleep to try to get back to baseline from pem, which occurs continually. both sleeping again and resting with eyes covered for hours half-asleep as a slow...

idk if this is relevant but: - idk my breathing rate. how do you measure? if you're paying attention to it, could that be a heisenberg-like confound? - i forget to breathe. then i feel like lack of oxygen and have to take a deep breath and more breaths or so. i have noticed this since at...

what about time of first symptoms? what about hot water, chicken broth, or other broths? what about oral polyphenols or sublinguals?

... T4 planners began in the autumn of 1939 to distribute carefully formulated questionnaires to all public health officials, public and private hospitals, mental institutions, and nursing homes for the chronically ill and aged. The limited space and wording on the...

thank you. i wonder if it was the texture, perhaps dryness?, that affected whitney? salmon regurgitated or got stuck before it reached my stomach. for me, fat affects gastroparesis, but not to my awareness esophagus. does it affect esophagus? idk why salmon had that effect. i stopped it...

i misinterpreted and thought 91 percent of them died? big effect size! then "relative to". oh. i wonder what @alex3619 thinks as i think he was talking at one point about restricting to small number of hours for ... was it prediabetes? diabetes? i eat one meal per day because i only have a...

great to have monbiot take us on. i have trouble with the nih paper being linked to, and with "outdated treatment", because it never made sense in the first place. but those are nits and welcome aboard.

tldr: iom perhaps becomes more salient at certain times. what would make pwme/clinicians think of trying it in some cases? idk if these anecdotes are useful or worth your read. === i match meicc++. it and ccc feel closer to "this feels like the disease we're talking about" than other...

i do not recall clearly, but in his paper, whitney describes switching from yogurt to turkey as making him significantly worse in ability to eat, presumably due to gastroparesis. i have been diagnosed as very severe, and due to a bunch of hits to my system feel very close to anything being able...

to me, nih's history forces the conclusion that they cannot be trusted.

i have a progressive form of m.e. sleep strongly affects m.e., and m.e. affects sleep. poor sleep gravely risks never recovering to baseline. what i mean by poor sleep includes not getting restorative sleep, by my definition below, and being disturbed when my body is not ready. === i have...

d worst e best worst for me knowing what to ans was the answer depends on context. idk how much test-retest variation i'd produce. Your Score: 0.90. would be lower if took average day seriously. can do little on any day and nothing without pem. i scored it as "delta from usual". every day...

does it mention long term or serious reactions?

i eat a low fiber diet because when i tried taking capsules of fiber they caused gastroparesis attacks.

i have heard that mast cells relase il-6. stopping degranulation might help? idk if relevant. are tehre other sources of il-6? i ahe taken fexofenadine and cetirizie which inhibit mast cells. but i gatin tolerance to them for allergic sympotms and sleep. idk if helped. [note: i am told...