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  1. Stuart

    Frequent urination

    Diabetes Insipidus is not uncommon in ME and Fibromyalgia patients, you can Google them together and find articles on it. I imagine because it is considered rare that little research is done, and if you can convince your doctor it might be an issue, they might well do some hormone based tests...
  2. Stuart

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    Ah crap... Not this again, you leave forums and social media awhile come back and it's Deja Vu all over again. (Facepalm). Does anyone know what MS stands for? Does anyone know what Multiple Sclerosis means? It means 'many scars.' Does that cover the illness with what it is named with? No...
  3. Stuart

    Parasympathetic activity is reduced during slow-wave sleep, but not resting wakefulness, in patients with chronic fatigue syndrome, 2019, Fatt et al

    I've noted wake / sleep transition disturbances, perhaps autonomic dysfunction that causes disturbances in heart function and breathing at the transition, and sleep paralysis persistence that causes waking paralysis to occur. Hypervigilant sleep might be a way to minimize the risk of these...
  4. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    Alibaba is sourcing it from a Chinese company Chengdu Youngshe Chemical Co., Ltd., I am not certain what the rules would be for importing it or using it for a prescription medication. I would think Szeto-Schller would have a patent on their Tetrapeptides, so if any of them did become the basis...
  5. Stuart

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Not to say ME doesn't kill, it just doesn't do it in a way that makes it apparent as AIDS does, dramatically, visibly. The COD given is rarely ME, but about 1/4 cardiac related, 1/4 cancer with high rates of leukemia and lymphoma, and 1/4 suicide. When we get sick enough, we drop out of...
  6. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    It is $1500 for 25mg. Even a milligram a day would be too expensive.
  7. Stuart

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    At least AIDS patients died. Yes, I said that, because if this is really the hockey stick of another epidemic that just didn't get paid attention to but has broadly infected 8-14% of the population whose current condition is a latent infection, or whose illness is sub-clinical, or if indeed...
  8. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    Do we have any examples of this? Well this comes to mind. ________________________________________ XMRV infection of Rhesus macaques 17 February 2011 The first detailed study of infection of nonhuman primates with the retrovirus XMRV reveals that the virus establishes a persistent infection...
  9. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    Here is something about Mitochondria-penetrating peptides (MPPs) for cancer therapy. Mitochondrial-targeted Penetrating Peptide Delivery for Cancer Therapy Article in Expert Opinion on Drug Delivery 15(10) · September 2018 with 49 Reads DOI: 10.1080/17425247.2018.1517750 Cite this publication...
  10. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    SS-31 Is a Novel Mitochondrial-Targeted Therapy That Crosses Blood-Brain Barrier Drs. Felsen and Poppas are researching a highly promising mitochondrial-targeted drug candidate, known as SS-31, which targets the inner mitochondrial membrane (IMM). As Dr. Felsen explained, its discovery was...
  11. Stuart

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    I recall an interview with some actress on the radio, during it the topic of dealing with her children came up, she said there are four basic rules in their household and when there is a dispute it is almost always involving one of them, so she simply asks them 'what number is it?' 1] No one...
  12. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    A discussion of the history of outbreaks fitting Ramsey's definition and the current patient symptoms, they are the same disease with variations in the virus, that this is now endemic (autoimmune / genetic disorders don't go 'endemic'), and significantly why else would there be the statement...
  13. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    And how else to interpret this? 'Courageous' and calling a 'spade a spade' implies saying some uncomfortable truth telling. "I loved Mareen's courageous talk. I loved that she called a spade a spade..." Ron Davis
  14. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    This however seems less ambiguous: "I suspect there is a central cause of the disease, I agree with Maureen....ultimately we want to figure out what that organism is and get rid of it. Many people are trying to sort that out." Ron Davis
  15. Stuart

    Maureen Hanson talk at OMF Symposium 2019

    Context matter of course, what was being said or what was being shown on screen when 'genius virus' was mentioned? Or was it heard wrong, might it have been 'genus virus?' ... Based upon the HJ tweet thread it seems that it is one 'clever' enough to hide, then a question to her about 'foolish...
  16. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    Biochimica et Biophysica Acta (BBA) - Molecular Basis of Disease Volume 1762, Issue 2, February 2006, Pages 256-265 Review Targeting antioxidants to mitochondria: A new therapeutic direction Author links open overlay panelShey-ShingSheuaDhananjayaNauduribM.W.Andersa...
  17. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    Open Access 2011, 8(1), 203-221; https://doi.org/10.3390/ijerph8010203 Article Toxicity of Neurons Treated with Herbicides and Neuroprotection by Mitochondria-Targeted Antioxidant SS31 by Tejaswini P. Reddy 1, Maria Manczak 1, Marcus J. Calkins 1, Peizhong Mao 1, Arubala P. Reddy 1, Ulziibat...
  18. Stuart

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Hillary Johnson‏ @oslersweb 9h9 hours ago Ron Davis: SS-19, an experimental drug that repairs mitochondria, designed for people with congestive heart failure, turned ME blood into control blood. OMF working with inventor. http://novelconjugates.com/product/tyrosol-ss19carbamate/ Moderator...
  19. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    Moderator note: This post and several following have been moved from this thread: 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019 ________________________________________ Hillary Johnson‏ @oslersweb 9h9 hours ago Ron...
  20. Stuart

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Since I can't stream this my best source is the tweet 'transcript,' this is back to square one, which keeps getting reset, and those who speak up get sent into the corner, we'll have to see what happens to Hanson. Hillary Johnson‏ @oslersweb 3h3 hours ago "It's still conceivable there are...
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