Apparently NICE guidelines get adopted in NI as a whole. (Pre NG206 we tried to have an exception for ME, but we were told it was not an option.)...
I’m not involved. Maybe ask Joan McParland & Hope 4 ME & Fibro NI if they are involved
Still early days, but I have been taking this Xtend BCCA drink. It says to mix a scoop with “at least 250mls” of water - well that is...
Ah good. I was just looking at the abstract.
So 1 in about 200 of the original sample risk getting Parkinsons 14 years later. (Rounding figure above to 800 of 160,000 is 1 in 200ish) They...
Now remember if you don’t win, it’s because you have the wrong mindset. Simple as that. You will only win if you do everything properly, and...
The approach is as bizarre as recommending somebody do the lottery to improve their fortunes, “because some people win a lot of money”!...
Ah. Okay not the variant I ordered. Let’s see how I go with the berry one.
@Mij Thanks for this update. I’ve been rather achey lately too, so I’ve ordered some of those Xtend electrolytes to try.
ME/CFS Research Insights or ME/CFS Research Skeptic I like these. I think the word “research” is better than “science” which seems lately to...
I absolutely can’t help myself, and so fairly often I do more than I should. For a few days in a row I might think “Wheeeeheeeee look at meeee!”...
Definitely. I changed from being a ‘worsener’ to being more steady state. Why was I initially a ‘worsener’ (great word BTW) but now that I’m back...
I’m thinking there are 3 ME states linked to activity/exertion. 1. In the moment symptoms and associated fatiguability. These symptoms can be...
This exactly! And when I was at my illest only very minor symptoms triggered a big and longterm lowering of that threshold. @Jonathan Edwards...
Yes! The threshold for WORSENING of the whole shebang is the problem. When at my worst, my disability ratchetted downwards with every attempt to...
Good point @Yann04 I have more function now than I did, but also more general aches and grumbles. When I was more ill, I had to be SO cautious....
PS. I couldn’t answer the poll. I am still concerned about covid. I am careful, but I really can’t tick any of the boxes. You might say I...
I no longer mask. I’m not convinced that simple masks are that protective (though they might somewhat reduce spread FROM an infected...
For me the feeling of poison is something that’s all over. I’m not thinking of a gastric poisoning, but rather more like there’s something ick...
So back in the early and more severe stages of my ME life (2012 - 2016) I was very alcohol intolerant. I have always enjoyed red wine, but it...
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