Same. Thanks for sharing I have tweeted Jo on X too.
Anyone else get a sign up page when trying to access Jo's blog? Is it now private? https://www.healthcarehubris.com
Thank you..I appreciate that This experience is exactly why people do not want to get involved in advocacy though, as there is always somebody...
Thank you If you are being forced to spend pip on food then clearly universal credit is insufficient to cover your basic needs? Agree..I have...
I have shared this article and these comments with the project group as I helped create the survey Calling people taking action useful idiots is...
This is an interesting idea. Frustrating that the research just isn't happening.
I was wondering if there was less of a gap in the ratio between sexes now that autism prevalence in women is getting recognised and diagnosed so...
Is it though, or is it an historical massive under diagnosis in women?
Yes. This.Thank you for elucidating this so clearly. I have had someone say to me that I am pathologising normal experiences, whereas actually...
As someone currently on several years long waiting lists for a very late diagnosis for autism and ADHD, I strongly suspect that my developing...
I completely understand your perspective on this. We have been screwed too many times. I will do my best to bring the pwME perspective to how the...
There is an option to say "none of these would help" There are some reasonable suggestions of things that we don't seem to have been able to get...
It has been designed to give us support to lobby MPs urgently about just how unfeasible these cuts are, how much they just are not listening and...
I am glad it helped..it helped me to be involved in the project. It all feels really tough right now. Hugs all round folks :hug:
I have been involved in this on behalf of MELN (ME Local Groups Network) along with Long Covid Support and #ThereForME New survey: Help inform...
LBC are running a story today about there potentially being more benefits cuts in the autumn statement...
Thanks all..I didn't even get a care assessment; I called them (twice) and got told not their problem and fobbed off onto a social prescriber, who...
Social care told me by phone that if I could shower and wipe my bum I wasn't their problem, so I have had to pay for a carer out of my PIP as I...
@Suffolkres Apologies, I was unable to attend as I had an appointment. I hope you found it useful.
@Suffolkres MELN's next meeting is on Friday 4th April. if you email our admin on melocalnetwork@gmail.com they can send you a copy of the agenda...
Separate names with a comma.
