1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 7
  1. Gingergrrl
    Post

    OI is getting worse - what meds can help ?

    @Dechi They are cardiologists who specialize in heart rhythm issues (vs. other types of cardiac issues). So (for example) if you were having...
    Post by: Gingergrrl, Sep 12, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  2. Gingergrrl
    Post

    Alone and Needing Back Surgery-need advice

    I hope to talk to her later today and will tell her that all you guys from both boards send your best wishes. @erin, did you want me to ask her...
    Post by: Gingergrrl, Aug 25, 2018 in forum: Pain and Inflammation
  3. Gingergrrl
    Post

    Alone and Needing Back Surgery-need advice

    I just posted an update in @LucyLouWho (Misfit Toy's) thread on the other board but also wanted to reply here since you tagged me @AndyPandy to...
    Post by: Gingergrrl, Aug 24, 2018 in forum: Pain and Inflammation
  4. Gingergrrl
    Post

    US - FDA recall of 2 thyroid medications

    Thanks @AndyPandy for tagging me but I take Armour Thyroid which doesn’t seem to be part of the recall.
    Post by: Gingergrrl, Aug 16, 2018 in forum: Other health news and research
  5. Gingergrrl
    Post

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    @Rossy191276 I have been wanting to reply to your thread re: benzos (either here or on PR and found it here first) and share my experience when I...
    Post by: Gingergrrl, Aug 15, 2018 in forum: Drug and supplement treatments
  6. Gingergrrl
    Post

    Intense 24/7 muscular weakness and fatigue anyone ?

    Thank you for the update @Rossy191276 and I am happy to talk further in the future via PM (on the other board) or by e-mail if it would be...
    Post by: Gingergrrl, Jun 10, 2018 in forum: General and other signs and symptoms
  7. Gingergrrl
    Post

    Discussion of patient self reported adverse effects of Rituximab

    @Dial It In I haven't seen any of the conference but did Professor Maureen Hanson speak about Rituximab specifically (or about an autoimmune...
    Post by: Gingergrrl, Jun 3, 2018 in forum: Drug and supplement treatments
  8. Gingergrrl
    Post

    30 & 31 May | Invest in ME Research international colloquium

    They are another name for the paraneoplastic autoantibodies (like the anti calcium channel one that I have). I would love to hear what Dr....
    Post by: Gingergrrl, May 31, 2018 in forum: General ME/CFS news
  9. Gingergrrl
    Post

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    It will be in the future. IVIG is widely being used for POTS and MCAS but is just not published yet. It will be.
    Post by: Gingergrrl, May 15, 2018 in forum: ME/CFS research
  10. Gingergrrl
    Post

    Intense 24/7 muscular weakness and fatigue anyone ?

    Rossy, I somehow missed your post back in April and the abnormality on my EMG (in 2016) was mono-neuropathy to the left phrenic nerve which showed...
    Post by: Gingergrrl, May 14, 2018 in forum: General and other signs and symptoms
  11. Gingergrrl
    Post

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    There is now a commercial test for this autoantibody through Cell Trend in Germany. To my knowledge you cannot test for this autoantibody in the...
    Post by: Gingergrrl, May 14, 2018 in forum: ME/CFS research
  12. Gingergrrl
    Post

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    I think you meant "autoantibodies" (autoimmunity) and if so, then yes, I have experience with POTS, many different autoantibodies, high dose IVIG,...
    Post by: Gingergrrl, May 14, 2018 in forum: ME/CFS research
  13. Gingergrrl
    Post

    Janet Dafoe - The Whitney Plea

    I don't think you should feel bad at all b/c you posted the video in good faith with no bad intentions! I have posted a few times thinking...
    Post by: Gingergrrl, May 13, 2018 in forum: General ME/CFS news
  14. Gingergrrl
    Post

    Janet Dafoe - The Whitney Plea

    I guess it depends how much knowledge the person already has re: the topic. I had never heard of the term "ME" prior to joining PR in 2014 (b/c...
    Post by: Gingergrrl, May 12, 2018 in forum: General ME/CFS news
  15. Gingergrrl
    Post

    Janet Dafoe - The Whitney Plea

    I have to respectfully disagree and I probably Google at least 10-15 things per day as they come up on line (or in real life) so I can understand...
    Post by: Gingergrrl, May 12, 2018 in forum: General ME/CFS news
  16. Gingergrrl
    Post

    House built on old golf course - yes or no ?

    @Dechi, I totally missed this thread until last night and wanted to add my congratulations on your new house! That is so exciting! Let us know...
    Post by: Gingergrrl, May 7, 2018 in forum: Home adaptations, mobility and personal care
  17. Gingergrrl
    Post

    Anybody had an angiogram ?

    This would be my #1 concern as well although I cannot remember if you have any history of allergic reactions @Dechi? My mast cell doctor told me...
    Post by: Gingergrrl, May 6, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  18. Gingergrrl
    Post

    Anybody had an angiogram ?

    @Dechi, I have never had an angiogram but I was curious why your doctor ordered one for you? Was it Dr. Hyde or another doctor? Are you having...
    Post by: Gingergrrl, May 3, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  19. Gingergrrl
    Post

    Intense 24/7 muscular weakness and fatigue anyone ?

    Hi Rossy, I am glad that you got your tests back but sorry that they have added to the confusion (which I really relate to)! :banghead: I would...
    Post by: Gingergrrl, Apr 29, 2018 in forum: General and other signs and symptoms
  20. Gingergrrl
    Post

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    Thank you for keeping us updated @TrixieStix and I was curious if you were having other improvements (separate from the fatigue not changing?) or...
    Post by: Gingergrrl, Apr 29, 2018 in forum: Immune: Autoimmune and Mast Cell Disorders
Showing results 1 to 20 of 132 Next >
Search Again
Page 1 of 7