What you can clearly see from threads like this one is most doctors consider ME to be an attitude problem and not a psych one. There are some...
The thing about these "alt right" people is that they are often contrarian and like to go against the established practices just for the sake of...
@Jonathan Edwards @Simon M Any thoughts?
https://paolomaccallini.com/2024/07/17/my-longitudinal-study-a-first-glance/ A patient collected some biological markers for 2 years, trying to...
Incredible how out of touch and obtuse these people are. The problem I've had consistently in my life is underestimating the effort something...
I don't, it's been years since I looked and have no energy to go and get it - as for tests, an example is the whole brain MRS Dr. Younger did -...
It's executive dysfunction caused by an issue in the limbic loop - basal ganglia, ACC and so on. These regions are responsible for the fluidity of...
It's the drug itself. I'm at the point where I'm too sick to do anything, I get pem just from the stimulation.
I get pem from stimulants (dopaminergics) so the answer is almost certainly yes.
I think this part could be interesting. My worst symptom by far is cognitive impairment and eosinophil activation is one of the most consistent...
How can you claim to take PEM seriously, and then come out saying the Hallmark of the illness is that patients don't want to do things and propose...
Might be slightly off topic but I think a lot of doctors are simply not bothered by inconsistency. Let's say for example that you see a...
I think he does agree with them. Most neurologists I've met that were sympathetic towards ME, did not discount the "BPS" views as false or...
I think this gets to the heart of the issue. It's the prejudice everyone has, doctors and laymen. "ME" is not an illness, it's something you...
It's the same BS as the depression questionnaires. You feel tired? 5 points. You have stomach symptoms and a headache? Another 5 points. You...
99% of doctors will laugh at the notion of 2 day CPET proving PEM Is real so yes, we do need a study with a few hundred people done by an...
A study with 300 well selected patients just with a 2 day CPET from the NIH would basically prove that ME is real. It will be unpleasant for those...
I'm not sure I'm following the logic here (patient burden aside): Point 1) We don't need to do CPET the second day, we'll start doing other tests...
So basically they couldn't be bothered to slightly alter their protocol to include the 2 day CPET. Talk about effort preference. I guess they have...
When you think about it, it is really insane the NIH can publish a study where they say the functional disability is caused by deconditioning, yet...
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