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  1. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Incredible how out of touch and obtuse these people are. The problem I've had consistently in my life is underestimating the effort something...
    Post by: Hubris, Mar 25, 2024 in forum: ME/CFS research
  2. Hubris
    Post

    I keep going through the same thought processes without resolution

    I don't, it's been years since I looked and have no energy to go and get it - as for tests, an example is the whole brain MRS Dr. Younger did -...
    Post by: Hubris, Mar 24, 2024 in forum: Neurological/cognitive/vision
  3. Hubris
    Post

    I keep going through the same thought processes without resolution

    It's executive dysfunction caused by an issue in the limbic loop - basal ganglia, ACC and so on. These regions are responsible for the fluidity of...
    Post by: Hubris, Mar 24, 2024 in forum: Neurological/cognitive/vision
  4. Hubris
    Post

    New 'Exercise Pill' Could Induce Fitness Benefits Without Exercise

    It's the drug itself. I'm at the point where I'm too sick to do anything, I get pem just from the stimulation.
    Post by: Hubris, Mar 24, 2024 in forum: Other health news and research
  5. Hubris
    Post

    New 'Exercise Pill' Could Induce Fitness Benefits Without Exercise

    I get pem from stimulants (dopaminergics) so the answer is almost certainly yes.
    Post by: Hubris, Mar 24, 2024 in forum: Other health news and research
  6. Hubris
    Post

    Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights... 2024 Jahanbani et al

    I think this part could be interesting. My worst symptom by far is cognitive impairment and eosinophil activation is one of the most consistent...
    Post by: Hubris, Mar 24, 2024 in forum: ME/CFS research
  7. Hubris
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    How can you claim to take PEM seriously, and then come out saying the Hallmark of the illness is that patients don't want to do things and propose...
    Post by: Hubris, Mar 12, 2024 in forum: ME/CFS research
  8. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Might be slightly off topic but I think a lot of doctors are simply not bothered by inconsistency. Let's say for example that you see a...
    Post by: Hubris, Mar 10, 2024 in forum: ME/CFS research
  9. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I think he does agree with them. Most neurologists I've met that were sympathetic towards ME, did not discount the "BPS" views as false or...
    Post by: Hubris, Mar 10, 2024 in forum: ME/CFS research
  10. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I think this gets to the heart of the issue. It's the prejudice everyone has, doctors and laymen. "ME" is not an illness, it's something you...
    Post by: Hubris, Mar 6, 2024 in forum: ME/CFS research
  11. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    It's the same BS as the depression questionnaires. You feel tired? 5 points. You have stomach symptoms and a headache? Another 5 points. You...
    Post by: Hubris, Feb 25, 2024 in forum: ME/CFS research
  12. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    99% of doctors will laugh at the notion of 2 day CPET proving PEM Is real so yes, we do need a study with a few hundred people done by an...
    Post by: Hubris, Feb 24, 2024 in forum: ME/CFS research
  13. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    A study with 300 well selected patients just with a 2 day CPET from the NIH would basically prove that ME is real. It will be unpleasant for those...
    Post by: Hubris, Feb 24, 2024 in forum: ME/CFS research
  14. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I'm not sure I'm following the logic here (patient burden aside): Point 1) We don't need to do CPET the second day, we'll start doing other tests...
    Post by: Hubris, Feb 24, 2024 in forum: ME/CFS research
  15. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    So basically they couldn't be bothered to slightly alter their protocol to include the 2 day CPET. Talk about effort preference. I guess they have...
    Post by: Hubris, Feb 24, 2024 in forum: ME/CFS research
  16. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    When you think about it, it is really insane the NIH can publish a study where they say the functional disability is caused by deconditioning, yet...
    Post by: Hubris, Feb 23, 2024 in forum: ME/CFS research
  17. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Isn't this wishful thinking though? Action is a consequence of will. Or should we say, effort follows effort preference... In the past 40 years,...
    Post by: Hubris, Feb 22, 2024 in forum: ME/CFS research
  18. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Is it a positive message? FND and BPS have never had any issue being internally inconsistent and filled to the brim with hypocrisy and cryptic...
    Post by: Hubris, Feb 22, 2024 in forum: ME/CFS research
  19. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Those symptoms are psychosomatic and thus not relevant. The only symptom that they considered "real" was this apparent unwillingness to do things,...
    Post by: Hubris, Feb 22, 2024 in forum: ME/CFS research
  20. Hubris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The difference is that, fundamentally, people with depression do not want to leave the bed. They have no POTS, PEM, and If they are forced to go...
    Post by: Hubris, Feb 22, 2024 in forum: ME/CFS research
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