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I agree with much of what you are saying here and I think we are on the same page but what I find confusing is that you are opposed to “joining forces with advocates from Lyme” yet you seem to agree that people with ME-like symptoms are being (mis)diagnosed with Lyme. We can’t be so certain they...

I’m in no way defending quackery or the “treatments” depicted in Afflicted. But the editing was intentional, science was removed and replaced with stigma. Discussion of legitimate biological abnormalities were omitted in place of alternative medicine. Its not like the producers were uninformed...

The majority of the people with ME that I know, have been diagnosed with other chronic illnesses. Like Jamison, I have also received a Lyme diagnosis. I’m not sure how Jamison’s Lyme was diagnosed but mine was a positive CDC Western Blot. I’ve also been diagnosed with Fibromyalgia by a...

Since Afflicted came out, I’ve been debating on whether or not it should be ignored or if we should kick advocacy into full gear. But I believe Afflicted has presented us with an unfortunate but unique opportunity. This may be the moment we have been waiting for to get ME the recognition it...