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  1. Louie41
    Post

    Philadelphia Inquirer: "Anthony Fauci and unlocking the biggest mystery in medicine" by Michael J. Stephen MD

    How many decades ago was that now? I don't have the same opinions on every subject from that long ago time that I have now. I have learned. And...
    Post by: Louie41, Jan 6, 2024 in forum: General ME/CFS news
  2. Louie41
    Post

    USA: News from Solve ME

    Merged thread An expanded agenda for Solve Not sure howI feel about this, but today I got this in an email from Solve: " In 2021, Solve...
    Post by: Louie41, Sep 30, 2023 in forum: News from organisations
  3. Louie41
    Post

    News from the USA, United States of America

    Merged thread Minnesota's leading epidemiologist gets Long Covid Osterholm learns firsthand what long COVID does Epidemiologist is wary about...
    Post by: Louie41, Jul 29, 2023 in forum: Regional news
  4. Louie41
    Post

    Anyone has a stair lift at home ? (Moving, part II)

    I haven't changed my mind, except that I perhaps appreciate our stair lifts more than I did in 2019. We bought ours from a manufacturer in...
    Post by: Louie41, May 15, 2023 in forum: Home adaptations, mobility and personal care
  5. Louie41
    Post

    Oral cancer/general anesthesia

    I'm so sorry to learn of this trouble, @SunnyK. I agree with @Arnie Pye that you need a lot more information before proceeding, and her questions...
    Post by: Louie41, Jan 17, 2023 in forum: Other specific illnesses
  6. Louie41
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    ???
    Post by: Louie41, Nov 28, 2022 in forum: ME/CFS research news
  7. Louie41
    Post

    Paucity of ME/CFS research in 2022

    Some of the U.S. ME patient organizations seem to be focusing on LC more than ME. This worries me.
    Post by: Louie41, Nov 27, 2022 in forum: ME/CFS research news
  8. Louie41
    Post

    USA: News from the Bateman Horne Center

    I received the following invite from the Bateman Horne Center, making me wonder if there's any actual science behind the assumptions noted:...
    Post by: Louie41, Oct 11, 2022 in forum: News from organisations
  9. Louie41
    Post

    Electromyography test - what’s it like?

    I've had this test twice. Both times, I found that by totally accepting and not resisting the shocks, and focusing on keeping my breath steady, I...
    Post by: Louie41, Sep 22, 2022 in forum: Other specific illnesses
  10. Louie41
    Post

    News from Doctors with ME

    This is just sad.
    Post by: Louie41, Sep 5, 2022 in forum: News from organisations
  11. Louie41
    Post

    Simple qigong routine for flexibility

    Thank you, @TigerLilea!
    Post by: Louie41, Jul 8, 2022 in forum: Other treatments
  12. Louie41
    Post

    Simple qigong routine for flexibility

    @perchance dreamer Thanks for this video. Do you have a link for the seated routine you mentioned?
    Post by: Louie41, Jul 8, 2022 in forum: Other treatments
  13. Louie41
    Post

    News from Doctors with ME

    I'm quite sure RR isn't American. It's too bad DwME seem so closed-minded. The understanding or expertise of the readers of this stuff isn't...
    Post by: Louie41, Jun 27, 2022 in forum: News from organisations
  14. Louie41
    Post

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    I read Osler's Web back when it first came out and I had the mental bandwidth to understand it. As I recall, it was very heavy going, both for...
    Post by: Louie41, May 15, 2022 in forum: General ME/CFS news
  15. Louie41
    Post

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    Where are the RCTs, showing that all patients with ME/CFS have PEM, when you really need them?
    Post by: Louie41, May 6, 2022 in forum: Resources
  16. Louie41
    Post

    USA: NIH National Institutes of Health news

    I'd like to read this, but can't find the link or referenced thread.
    Post by: Louie41, Feb 18, 2022 in forum: News from organisations
  17. Louie41
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    The only "emotional discomfort" I've experienced since being infected is primarily due to the gaslighting, neglect and downright hostility I've...
    Post by: Louie41, Dec 29, 2021 in forum: ME/CFS research news
  18. Louie41
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    :heart:
    Post by: Louie41, Dec 28, 2021 in forum: General ME/CFS news
  19. Louie41
    Post

    USA: News from #MEAction

    That happened to me too, and I just skipped those questions after thinking, once again, how even ME organizations don't "get" severe ME.
    Post by: Louie41, Nov 3, 2021 in forum: News from organisations
  20. Louie41
    Post

    Fundraising for UK ME charities in memory of Graham McPhee

    Much as I would have liked to give to UK charities as requested, I could't do it online and find it too taxing to write and send a check. So I...
    Post by: Louie41, Oct 28, 2021 in forum: Fundraising
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