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Sorry yes - I should've said. The deadline is 20th July (though there may be some flexibility)

A good friend of mine has just launched a "zine" - a small, limited-release online magazine - for those living with infection-associated chronic conditions. They're looking for submissions of any writing (e.g., poetry, prose, personal experiences, factual information about conditions) or...

Hi - for a "capstone" (mini dissertation) I'm writing, does anyone know of any papers where the BPS school lays out its understanding of the earliest stages of ME - the weeks directly following a viral infection? Specifically, how behavioural factors during this phase essentially create and then...

Ah fantastic - added to the list!

This is so incredibly helpful!! Thank you so much @Yann04 @Trish @Kitty @EzzieD @Mfairma @NelliePledge @Arnie Pye @Theresa @Sly Saint

I'm particularly interested in articles and books on the history of the biopsychosocial model - I've found a lot more written on the American side of the history than the rise and fall of the more European (and UK) based biopsychosocial model

I'm making what may be a doomed attempt over the next 8 months to complete the masters degree I've been on a leave of absence from for 4 years. I have to write a "capstone" (a short dissertation), and I've chosen to write it on Long Covid and ME. I'm going to have a brief overview of the...

Honestly, if these are the standards, I could definitely write far more convincing articles arguing that viral persistence or microclots are at the root of all Long Covid and targetting those mechanisms is how all Long Covid could ultimately be cured. And those articles would be rooted in far...

I've been thinking about this further, and the only way these ideas can be falsified or clarified is through the one thing the mind-body figures are silently opposed to - large-scale, consistent funding for biomedical research. So if you take the idea that the various pathological abnormalities...

There's also something quite cultish about the insinuation, which is rather strong in this piece, that support groups play a fundamental role in keeping people ill, meaning that to recover patients need to shut themselves off from these spaces, which we know are such an important support. The...

The article’s one saving grace is that it’s published in ‘Experience Life,’ which no one’s heard of or takes seriously.

And this is the other thing about recovery stories. I've said this elsewhere, but when you tally the number of ME/CFS, post-viral fatigue, Long Covid, and POTS cases across the English speaking world, you're probably talking about something in excess of 10 million. And we know that a substantial...

I'm not sure she's even had Long Covid. If she has, what I'm about to say will be unfair, but there are quite a few woo-woo journalists for whom Long Covid is this ideal blank canvas on which to project their views about health and the human body. They'd be quickly dismissed if they applied...

Also I think relying on quotes from doctors who treat patients with mind-body techniques in lieu of actual scientific evidence is quite problematic. Over the course of the illness, I've interacted with very few doctors who aren't utterly convinced that their treatments largely cure patients -...

A couple of things that struck me: 'There are ways to differentiate a pathological condition, such as cancer or heart disease, from a condition driven by a hypervigilant nervous system. “If the pattern of symptoms does not follow some sort of structural damage in the body — if pain, tingling...

Article: Can Brain Retraining Help Me Recover From Long COVID? A journalist quite enamored with the mystical healing properties of mind-body techniques published this article last month: https://experiencelife.lifetime.life/article/can-brain-retraining-help-me-recover-from-long-covid/...

I’m pretty sure this is the first study published from the central tranche of RECOVER - a huge observational study with tens of thousands of participants. And it’s completely worthless. The cohort is incredibly large and heterogenous - there’s absolutely no attempt at phenotyping, which is...

I'll respectfully disagree about MCAS and POTS. But even if you don't believe there is sufficient evidence for either being discrete syndromes, a) in the case of POTS, ivabradine and, in particular, beta blockers are clearly beneficial for patients who have orthostatic symptoms connected to an...

The thing is that Long Covid is a much broader diagnosis than ME/CFS. So there are some patients for whom anti-coagulants are very appropriate - but often these will be post-hospitalisation cases or people who have elevated d-dimer readings (I'm under the care of the UCLH Long Covid Clinic...

I haven't read the Cochrane review and I'm in no position to judge the science surrounding microclots. However, Garner's involvement does seem to completely undermine any sense of Chocrane's objectivity - I'd be very surprised if Paul Garner didn't initiate this review as a way to undermine the...