You’re so welcome, I hope it helps! Not sure if you’re familiar with the Bateman Horne Center...
Two groups to try on FB - Dysautonomia International - Ohio Support Group & ME-ICC & other marginalized diseases (public).
He has a very good local reputation as someone who has an extraordinary grasp of the field/issues patients are struggling with. I’ve considered...
I am also in Ohio/NE and although I have not seen Dr. Wilson personally his office might be a good resource for local referral....
Truth and reconciliation first requires truth. At the very least an insistence on the inclusion of M.E. cohorts in research going forward.
Not surprising, but I honestly wasn't expecting a full denial. I respect the privilege(s) and understand competing interests/harms, it's the...
Thank you! I've been thinking about other contacts within HHS the nominations for the LCAC are still open until 1/16 (if I remember correctly)...
I got in touch with Jennie in 2019 right after the govt. shutdown (which the date for HHS to reply to Congress fell within) but at that time she...
Writing for some advice/guidance on pursuing an appeal of a rejected FOIA request for information on the dissolution of the Chronic Fatigue...
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