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  1. forestglip

    Running FLAMES on DecodeME data

    MAGMA has it for download under the reference section for European: https://cncr.nl/research/magma/ I have no idea if it's the same format as what you'd need for the finemapping part.
  2. forestglip

    Running FLAMES on DecodeME data

    Yeah, I'm not sure of the size. Maybe that's raw individual data while all you'd need is more of a summary format. It just seemed like you might need to apply as a researcher to get access to UKB data. But it's possible there's some source out there we didn't see.
  3. forestglip

    Miscellaneous Research Thread

    Posts about a drug trial in the STIMULATE-ICP project have been moved to: STIMULATE-ICP: A pragmatic, multi-centre, cluster randomised trial of an integrated care pathway with a nested, Phase III, open label, adaptive platform randomised drug trial in individuals with Long COVID: A structured...
  4. forestglip

    STIMULATE-ICP: [...] Phase III, open label, adaptive platform randomised drug trial in [LC]: [Protocol], 2023, Forshaw et al

    Here's the abstract: STIMULATE-ICP: A pragmatic, multi-centre, cluster randomised trial of an integrated care pathway with a nested, Phase III, open label, adaptive platform randomised drug trial in individuals with Long COVID: A structured protocol [Line breaks added] Introduction Long...
  5. forestglip

    Opinion To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! 2025 Lubell

    I made a thread to dicuss this other paper: Connecting the Dots Between ME/CFS, HSD/hEDS, Abnormal Fascia, Lymphatic and Glymphatic System Impairment, and Craniocervical Instability, 2025, Lubel
  6. forestglip

    Opposite white matter abnormalities in post-infectious vs. gradual onset chronic fatigue syndrome revealed by diffusion MRI, 2024, Yu et al

    Some posts have been moved to: Evidence that M.E. isn’t contagious?
  7. forestglip

    Preprint Connecting the Dots Between ME/CFS, HSD/hEDS, Abnormal Fascia, Lymphatic and Glymphatic System Impairment, and Craniocervical Instability, 2025, Lubel

    Connecting the Dots Between ME/CFS, HSD/hEDS, Abnormal Fascia, Lymphatic and Glymphatic System Impairment, and Craniocervical Instability Lubell, Jeffrey Abstract This hypothesis paper encourages a comprehensive approach to studying Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)...
  8. forestglip

    STIMULATE-ICP: [...] Phase III, open label, adaptive platform randomised drug trial in [LC]: [Protocol], 2023, Forshaw et al

    Thanks @Nightsong. If anyone's interested, here's a 51 minute talk from Emma Wall from earlier this year:
  9. forestglip

    STIMULATE-ICP: [...] Phase III, open label, adaptive platform randomised drug trial in [LC]: [Protocol], 2023, Forshaw et al

    See post #8 for abstract -------- Nature Medicine: "Eleven clinical trials that will shape medicine in 2026" "Nature Medicine asks leading researchers to name their top clinical trial for 2026, from long-awaited vaccines for infectious diseases to new treatments for advanced cancers and long...
  10. forestglip

    Running FLAMES on DecodeME data

    BioBank would be ideal, since it more closely matches the participants. But 1000G still worked well enough to get relatively the same results when I used it in FUMA the first time, mostly just less significant. I don't think @hotblack and I ended up finding a source for UKB LD files when trying...
  11. forestglip

    Running FLAMES on DecodeME data

    I don't think I tried fine mapping at all. That's about where I gave up trying to do FLAMES. (Edit: I don't think I did pops either actually.)
  12. forestglip

    [Abstract] Desentangling the [LC] biomarker network: Insights into viral persistence and therapeutic response using random forest [...], 2025,Sanson+

    The link still seems to work for me. This came up in Google Scholar alerts and can be seen in search results, but it links to the same thing.
  13. forestglip

    United Kingdom: ME Association governance issues

    Interesting and refreshingly self-aware. Some patients. But other forums are filled with people who think the treatment is in the next supplement. Or people who don't read about ME/CFS every day like us. They got sick, the doctor says there's a name for it, and they expect the doctor to do...
  14. forestglip

    Running FLAMES on DecodeME data

    Oh great, yeah I think I sent the wrong URL.
  15. forestglip

    [Abstract] Broadly neutralizing antibodies to SARS-CoV-2 in Long COVID areassociated with viral persistence and clinical outcome, 2025, Liu et al

    Broadly neutralizing antibodies to SARS-CoV-2 in Long COVID are associated with viral persistence and clinical outcome Chenyu Liu, Daniel Sanson, Serhan Soylu, Leen Moens, Isabelle Meyts, Marc Jamoulle, Johan Van Weyenbergh [Line breaks added] Abstract Long COVID (also known as post-acute...
  16. forestglip

    [Abstract] Desentangling the [LC] biomarker network: Insights into viral persistence and therapeutic response using random forest [...], 2025,Sanson+

    Desentangling the Long Covid biomarker network: Insights into viral persistence and therapeutic response using random forest feature selection Daniel Sanson , Chenyu Liu, Serhan Soylu, Leen Moens, Isabelle Meyts, Marc Jamoulle, Johan Van Weyenbergh [Line breaks added] Abstract Long COVID...
  17. forestglip

    Running FLAMES on DecodeME data

    Sure, it was private before, but it's public now: https://fuma.ctglab.nl/snp2gene/653365
  18. forestglip

    Heightened prevalence of chronic fatigue syndrome in U.S. sexual minorities, 2026, Balshi et al

    Heightened prevalence of chronic fatigue syndrome in U.S. sexual minorities Purpose To assess the prevalence and odds of chronic fatigue syndrome (CFS) among lesbian, gay, bisexual, and other sexual minority individuals (LGB+) in the United States using a multi-year, nationally representative...
  19. forestglip

    Running FLAMES on DecodeME data

    Sure. It's too big to upload here, but I uploaded it to a file sharing site. The link will expire in a week: https://limewire.com/d/gyXn2#CsV6DOeqGh The link isn't working for me. I think something was different. @ME/CFS Science Blog pointed out that there seemed to be fewer variants than...
  20. forestglip

    Long COVID Recovery and Exercise Adherence: 32-Month Study, 2025, Rolo-Duarte

    Could it be that 58.3% refers to the proportion of people with hypertension when only considering people with at least one comorbidity?
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