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Some posts have been moved to the thread for the Visible app: Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

Response to the above: There is currently no evidence that long-COVID-19 leads to neurodegenerative diseases such as SDAT, amyotrophic lateral sclerosis, or Parkinson’s disease Finsterer, Josef No abstract, snippets: Web | DOI | Brain Circulation | December 2025

From long COVID to neurodegeneration Carpio-Orantes, Luis Del No abstract. Snippets: Web | DOI | PMC | PDF | Brain Circulation | Commentary | Jan-Mar 2025

Immune transcriptomic changes in Australian Gulf War veterans Eaton-Fitch, Natalie; Sasso, Etianne Martini; Marshall-Gradisnik, Sonya [Line breaks added] Background Gulf War Illness (GWI) is a chronic multisystemic illness found in one-third of Gulf War Veterans. The aetiology of GWI is...

Risk Factors for Severe Post-COVID Condition in Children, Adolescents, and Young Adults [Line breaks added] Background Post-COVID condition (PCC) in children and young people (PCCcyp) remains a significant health burden. Early identification of patients at risk for severe disease, including...

They also used a 19 year old study for prevalence. I assume because prevalence studies have moved on to newer criteria since then. I don't see any mentions of post-exertional malaise. I mean if they want to study a disease defined by those criteria, I guess CFS is the name of it. But it...

I appreciate your determination to pursue this lead, nataliezzz. I unfortunately don't have the bandwidth to really engage with the topic. Just from the abstract and a quick skim, ~20% prevalence of FM seems fairly high to me, even given fairly broad criteria, so it seems plausible that...

You did say: So it seems like we can't be sure of the prevalence of FM in asymptomatic OSA based on this study, since people in a study are probably mostly symptomatic.

Note that we have a members only thread for this topic as well: Poisoned Feeling

Feasibility of predicting next-day fatigue levels using heart rate variability and activity-sleep metrics in people with post-COVID fatigue [Line breaks added] Background Post-COVID fatigue (pCF) represents a significant burden for many individuals following SARS-CoV-2 infection. The...

I didn't put this in the ME/CFS forum because their definition of CFS is just high fatigue:

Peripheral Levels of Selected Biomarkers in Patients with Post-Sarcoidosis Chronic Fatigue Syndrome [Line breaks added] Introduction Chronic fatigue syndrome (CFS) is characterized by persistent fatigue and multiple symptoms such as cognitive impairment and muscle pain, often linked to...

Subjective outcomes and no placebo. From methods: Does that mean they incorporated scores for everyone up to the endpoint into the statistics? Not clear to me because this from the discussion says the dropouts may have biased the analysis: Speculation on why it would work: On why they...

The Sick Times: '“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague' "Thousands of people took part online and in person for the hybrid protest calling for recognition of people with these diseases, better care, appropriate policy, and long term funding of...

Is it this: I think in figure 1 it says the test cohort has 3,579 cases and 113,735 controls.

I think she might have missed that sensitivity check in the paper. Here's someone asking her if the peer reviewed version of the study checking other years allays her concerns (her post was about the preprint). Response: The same sensitivity check the person asked about was in the preprint...

If eligibility for school was the reason for having more or less dementia, then you'd expect to see the same effect in other years, right? Instead of splitting the groups by being born before or after September 2, 1933, what if you split groups by being born before or after September 2, 1932...

That's the thing. Selection bias doesn't really matter here. Simple way to imagine it: there's a room of people. They all randomly decided to wear a red or blue shirt that morning (akin to being born before or after the cutoff date in the actual study). Someone walks in and says "people...

Are you referring to the new study linked in another thread? It's basically the same methodology as this thread's study, but instead of looking at dementia diagnoses, they looked at two other metrics: diagnosis of mild cognitive impairment and death from dementia. So something like a...

Thread for previous studies on this topic: Causal evidence that herpes zoster vaccination prevents a proportion of dementia cases, 2023, Markus Eyting