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    The ruling out of other conditions: do you think you've had adequate ruling out of other conditions?

    The King wouldn't be satisfied with standard care, that's for sure. https://www.independent.co.uk/life-style/royal-family/king-charles-homeopathy-head-medical-household-b2461795.html https://www.facultyofhomeopathy.org/pages/Patron
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    A Mixed-Methods Evaluation of a [Post-COVID] and Recovery Intervention Delivered in a Football Club Community Trust, 2025, Rimmer et al.

    There was that tennis programme. https://www.s4me.info/threads/uk-nhs-feel-good-tennis-for-long-covid.38700/
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    Scientific research journals and publishers

    https://neuromatch.social/@neuralreckoning/115621920496307977 Post includes horrendous AI slop image from the first publication referred to.
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    Construct validity of self-reported and interview-guided administration methods of the Danish version of the [PCFS], 2025, Sørensen+

    Another example of the assumption early in the pandemic that the sequelae of Covid-19 would mainly involve respiratory complications. It's good that the failings of this approach are being recognised.
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    Distinct brain alterations and neurodegenerative processes in cognitive impairment associated with post-acute sequelae of COVID-19, 2025, Seo et al.

    Is the stuff about iron accumulation potentially interesting? Thinking of a few other studies where iron/ferritin has come up.
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    Preprint A region-specific brain dysfunction underlies cognitive impairment in long COVID brain fog, 2025, Yang et al

    Baseline and post-stimulation box plots for the real and sham TUS (20 people each) don't look like they've found anything especially gamechanging.
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    Effectiveness of Five-Element Regulatory Therapy for post-COVID syndrome: a retrospective cohort study, 2025, Ding et al.

    and the treatment lasted two weeks. So one thing they've confirmed is that lots of post-acute Covid symptoms clear up within a short time. The Five Elements are supposedly the stages of disease, and the patients in the treatment group received different herbal medicines according to which stage...
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    Network structure underpinning (dys)homeostasis in chronic fatigue syndrome; Preliminary findings. Newton et al. 2019

    The authors note the limitations of small sample sizes and the lack of a control group for the 'combined network'. They haven't spotted another limitation, which is that they only tested people with CFS (Fukuda) against healthy controls, no other disease condition.
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    Trial Report Resistance Exercise Therapy for Long COVID: a Randomized, Controlled Trial 2025 Berry et al.

    So the intervention group had about a 50% greater likelihood of having an 'indication of ME/CFS diagnosis' than the standard care group after 3 months?
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    UK BACME ME/CFS Guide to Therapy 2025

    Thread for the BACME guide for severe & very severe is here https://www.s4me.info/threads/united-kingdom-bacme-guidelines-for-severe-me-2019-and-2024-update.21990/#post-139691
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    UK BACME ME/CFS Guide to Therapy 2025

    To be fair, p. 2 says but that's easy to miss. And the denial of reality throughout is still stark. (edited to add) There's nothing in the activity management sections saying that if a patient deteriorates, the therapist should switch to using the guide for severe patients. Because they don't...
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    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    But it might be a deterrent to hiring all the extra therapists and supervisors of therapists that the BACME plan entails.
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    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    There's one thread to pull that might unravel it - the fact that it's a waste of money, at a time when govt is looking for yet more cuts.
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    UK BACME ME/CFS Guide to Therapy 2025

    Internet search for 'grading in therapy' finds lots of explanations like this one: from https://www.otdude.com/students/introduction-to-grading-occupational-therapy-interventions/ So it's just the same assumption again: what pwME need is to be continually challenged to 'progress' by doing...
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    UK BACME ME/CFS Guide to Therapy 2025

    On page 29, in 'Section 4: Sustaining' ('To continue a focus on the person’s goals and an improved quality of life, whilst accommodating the demands of daily life over time') there's a subsection titled 'Emotional wellbeing', and the first bullet point under it is 'Self-management of grading'...
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    UK BACME ME/CFS Guide to Therapy 2025

    p. 31 Jobs for the boys (and girls).
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