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    Associations between heart rate and physical activity in people with post-COVID-19 condition accounting for [ME/CFS], 2026, Adodo+

    It makes me a little suspicious when a paper makes a big deal of a particular statistical association but doesn't tell you the actual data from which it was derived.
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    New book: 'Breaking Free' (PASC: ME and Covid-19)

    Just noticed this book is among the 'useful resources and support' recommended by Gloucestershire NHS now that its post-Covid service has closed. Ugh. https://www.ghc.nhs.uk/our-teams-and-services/post-covid/
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    Psychological symptoms predict long coronavirus disease 2019: a prospective analysis from the Women’s Health Initiative, 2026, Al-Delaimy et al.

    'depressive and anxiety symptoms', i.e. answering yes to items on screening questionnaires like 'do you have trouble sleeping' or 'have you stopped or reduced your usual activities', which might be signs of a mental health issue but also might be signs of many other things.
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    Invisible Illness A History, from Hysteria to Long Covid, 2026, Mendenhall (book)

    That's well put. It's a shame when writers with good intentions spoil their work by starting from a narrative concept and making patients' stories fit into it (which always means ignoring any facts that inconveniently stick out).
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    Medical gaslighting: conceptual and theoretical foundations, 2026, Noble

    I think it's an important distinction because "gaslighting" is a dead-end accusation. "Doctors should stop gaslighting patients!" - doctors reply: "We aren't doing that, we're trying to help." Whereas "Doctors need to keep their professional knowledge up to date so that they don't inadvertently...
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    Do you have any ideas for topics for PRIME seminars?

    I want someone to be looking at these possible central and peripheral signalling abnormalities in LC - do they replicate, are they also observable in ME/CFS...
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    Medical gaslighting: conceptual and theoretical foundations, 2026, Noble

    The problem with the phrase 'medical gaslighting' is that 'gaslighting' has a specific meaning: the gaslighter is trying to persuade the other person to believe something they themselves know to be untrue. In the film, the perpetrator was trying to make the victim believe she was going mad so...
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    Australia: $4.7 million for UNSW researchers to investigate long COVID

    Relevant forum threads: https://www.s4me.info/threads/immunological-dysfunction-persists-for-8-months-following-initial-mild-moderate-sars-cov-2-infection-2021-phetsouphanh-et-al.20889/...
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    Distinct functional connectivity patterns in [ME/CFS & LC] during cognitive fatigue: a 7 Tesla task-fMRI study, 2026, Inderyas, Marshall-Gradisnik+

    But if the brain activity necessary for the task isn't happening, or is impeded from happening, then choice doesn't enter into it (rational or otherwise). it's just not happening.
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    Distinct functional connectivity patterns in [ME/CFS & LC] during cognitive fatigue: a 7 Tesla task-fMRI study, 2026, Inderyas, Marshall-Gradisnik+

    Yes, and: Funny how these apathetic and uninterested people managed to sign up for and participate in the study, completely voluntarily... Also the speculation about 'response to trauma' here is weird.
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    Preprint Evidence of Accumulating Neurophysiologic Dysfunction in Persistent Post-COVID Fatigue, 2025, Germann et al

    I'm wondering the same thing, having got new fancy bathroom scales which tell me my muscle mass is similarly on the cusp of normal and athlete-standard - this after four years of being housebound and extremely sedentary.
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    Trial Report REGENECYTE cord blood cell therapy in post-COVID syndrome: a phase IIa randomized, placebo-controlled trial, 2026, Huang et al

    Little or no change in quality of life measures across the 6 months (see graphs) suggests the improvement in fatigue scores is an artifact of the Chalder fatigue questionnaires.
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    Association Between Obesity and Post-COVID-19 Condition in Military Conscripts, 2026, Domanyi et al.

    It would be potentially interesting to compare waist-to-height ratios before and after infection, in a physically active population like this one - less likely to be putting on extra belly fat from being sedentary, so it might line up with results being found elsewhere regarding changes in fat...
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Just to give another example, I googled 'Long Covid neuropathy' last night and one of the top results was the NHSInform page on Long Covid: https://www.nhsinform.scot/long-term-effects-of-covid-19-long-covid/ [edit to add, sorry, it's the POTS link given on that page, not the LC page itself]...
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