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Unfortunately I find this sort of thing completely unreadable after the first few lines :laughing:

On the Youtube page it says: "Our apologies - unfortunately, due to a technical error, the captions file wasn't saved and we don't have capacity to generate them ourselves given the webinar's length." which is a pity, for those of us not able to watch a 2h 38 video!

Moved post Not sure if this is the right place to post this, but it seems something to keep an eye on. https://www.timeshighereducation.com/news/three-uk-research-councils-suspend-funding-opportunities

Ref 18 is Linnhoff S, Fiene M, Heinze H-J, Zaehle T. Cognitive fatigue in multiple sclerosis: an objective approach to diagnosis and treatment by transcranial electrical stimulation. Brain Sci. 2019 May;9(5):100. https://doi.org/10.3390/brainsci9050100.

They say: (does that mean they think only severe patients get PEM?)

This site is selling an "intensive treatment" claiming to deliver "90% recovery" in one week.

It makes me a little suspicious when a paper makes a big deal of a particular statistical association but doesn't tell you the actual data from which it was derived.

Just noticed this book is among the 'useful resources and support' recommended by Gloucestershire NHS now that its post-Covid service has closed. Ugh. https://www.ghc.nhs.uk/our-teams-and-services/post-covid/

'depressive and anxiety symptoms', i.e. answering yes to items on screening questionnaires like 'do you have trouble sleeping' or 'have you stopped or reduced your usual activities', which might be signs of a mental health issue but also might be signs of many other things.

always the slippery language

That's well put. It's a shame when writers with good intentions spoil their work by starting from a narrative concept and making patients' stories fit into it (which always means ignoring any facts that inconveniently stick out).

I think it's an important distinction because "gaslighting" is a dead-end accusation. "Doctors should stop gaslighting patients!" - doctors reply: "We aren't doing that, we're trying to help." Whereas "Doctors need to keep their professional knowledge up to date so that they don't inadvertently...

I want someone to be looking at these possible central and peripheral signalling abnormalities in LC - do they replicate, are they also observable in ME/CFS...

The problem with the phrase 'medical gaslighting' is that 'gaslighting' has a specific meaning: the gaslighter is trying to persuade the other person to believe something they themselves know to be untrue. In the film, the perpetrator was trying to make the victim believe she was going mad so...

No. It's a very superficial copy-and-paste exercise, presumably a student assignment?

Relevant forum threads: https://www.s4me.info/threads/immunological-dysfunction-persists-for-8-months-following-initial-mild-moderate-sars-cov-2-infection-2021-phetsouphanh-et-al.20889/...

is there any legitimate reason to assume the direction of causality here?

But if the brain activity necessary for the task isn't happening, or is impeded from happening, then choice doesn't enter into it (rational or otherwise). it's just not happening.

Yes, and: Funny how these apathetic and uninterested people managed to sign up for and participate in the study, completely voluntarily... Also the speculation about 'response to trauma' here is weird.

Nice.