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Saw this posted on social media today with a comment about how "exercise cleanses your brain!" which is clearly very oversimplistic (the study is on anaesthetised mice having their abdomens mechanically squeezed and the resulting movement in the brain). But it might be interesting for those...

You're now the second person to tell me that nettle tea has a good effect on their brainfog. Sadly it does nothing for mine! At least it was a pretty cheap and easy thing to try.

Expectations being managed downward.

What are they identifying as 'neuroinflammation' and 'neuroinflammatory activity'? (I've tried looking at the paper but too foggy.)

The impression it gives is that they think people just need to be jollied along, and they don't believe there's any underlying problem which might be made worse if people are given harmful fake advice.

although, how reliable is the DSQ in measuring severity of PEM (and their choice of cutoff)?

but limitations:

The higher heart rate in controls seems interesting - is this seen in other CPET studies?

Post-Covid, declined to severe after about 8 weeks of trying to "shake it off" and do normal life stuff despite feeling rough.

Or maybe Oonagh Cousins' account of how Long Covid stopped her from Olympics rowing training.

That's reminded me that you can also go back and retrospectively change your scores in Visible - it reminded me because I often don't really know how a "crash" is defined and if I was having one, as opposed to the much more grey areas of PEM as it develops and disappears. So sometimes I would go...

This was one thing I did find useful with Visible (the paid version): you can set it to beep when your heart rate has been over a certain threshold for a certain amount of time. So it wouldn't beep for every single HR spike, which would just get annoying, but it would beep if I'd got into that...

I knew I'd seen the name Betsi Cadwaladr somewhere. From the ELAROS seminar: https://www.s4me.info/threads/the-elaros-nhs-digital-system-for-patient-clinician-digital-sharing-questionnaire-data-includes-yorkshire-rehab-scale-and-open-oh-app.39324/page-8#post-615069

I knew I'd seen the name Betsi Cadwaladr somewhere. From the ELAROS seminar: https://www.s4me.info/threads/the-elaros-nhs-digital-system-for-patient-clinician-digital-sharing-questionnaire-data-includes-yorkshire-rehab-scale-and-open-oh-app.39324/page-8#post-615069

The email is titled 'THANK YOU for choosing to fundraise for SequenceME!' and in the body of the email 'Thank you so much for choosing SequenceME as your cause' so I'm going to trust that that's good enough for now.

I selected Action for ME as the charity and was intending to email them to say it was for Sequence specifically, but then I got an email from them almost immediately saying 'thank you for fundraising for SequenceME'. Very efficient! They also suggested I could send them my 'fundraising story'...

Great idea - I've been really cheered by the response to mine. I can't read the whole text right now but just one thing from my experience: on the Justgiving website and on social media shares of your page, only the first bit of 'your story' shows up automatically and you have to click to...

My husband has posted it on Facebook. Very happy to have it shared on any platform. I'm only on Mastodon myself (all the others are a bit hectic for me!)

Thank you!

That's me. I'm delighted it's already over £1000 in less than 24 hours.