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One easy way to reduce your stress level is to avoid assessing the severity of 8 of your symptoms every 3 hours for 24 days.

Unfortunately the 'Summary of Clinical Trial Results' has been written so as to suggest all three rehab approaches were effective. https://recovercovid.org/sites/default/files/summaries/RECOVERClinicalTrialNEURO.pdf Nowhere in the document does it state the fact that they found no evidence of...

The bar is set so low that I'm genuinely impressed with them for stating the lack of benefit, rather than digging out some vaguely positive speck of data and writing it up as their main finding. Also they seem to have more authors than participants. Generally that might be a red flag for a...

Vaccination would be another example. There is astonishing misinformation going around about vaccines, people promulgating the weirdest ideas, but this hasn't led to medics deciding to give up vaccinating anyone - because they are confident that what they have to offer is better than what the...

But if S4ME is going to advise families to stick to saying 'my child can't do XYZ because it makes them ill', rather than 'my child can't do XYZ because it makes them ill due to [unproven theory]' because the second form of words will expose them to safeguarding procedures and allegations of...

It just seems we are in bizarro-world when the MRC co-hosts a showcase intended in part to "Highlight the bespoke support available from NIHR and MRC for researchers in preparing applications", including representation from an organisation which can't apply to the MRC to get funding for its...

re MRC saying they are ready and waiting to fund what they consider to be good research proposals: Does that mean SequenceME has been turned down for funding by MRC, or never applied?

I've just happened to look at the ME Association's article 'LONG COVID AND ME/CFS: Are they the same condition?' https://meassociation.org.uk/wp-content/uploads/2025/10/COVID-19-LONG-COVID-MECFS-ARE-THEY-SAME-CONDITION-V1-1.pdf it's full of stuff about mitochondrial dysfunction, dysregulation...

Oh I get it. Thanks. Still think the range of 2-225 for the aerobics sessions (in 180-odd days) is a bit startling.

"median of 68 resistance (range 1-68 sessions)" can't be right, can it? Anyhow, it's clear from that sentence that adherence was extremely variable - some participants doing almost no exercise and others doing more than 1 session per day for 6 months - and yet the results are phrased as if the...

Going by the experience of a friend who has had a delayed diagnosis of haemochromatosis - as a woman of childbearing age, you get fobbed off with "of course you're tired, everyone's tired these days [eyeroll]", "have you tried yoga" and "do you want antidepressants?"

So none of the healthy controls has signs of a really common human herpes virus, but nearly half of them have a bat virus? Were they recruited from a superhero lair under Gotham City?

Noteworthy that on their radar chart of symptoms the 'slight', 'moderate' and 'severe functional limitations' groups all make more or less the same shape, while the 'negligible' one has a very different shape (fatigue plus lung/cardio problems but not much else). It would be interesting to see...

Their speaker on 14 October 2025 was Lyndsey Woodman, a 'Health Qigong instructor, Breathwork instructor, Clinical Hypnotherapist, Master NLP practitioner and coach, as well as an EFT [Emotional Freedom Technique] and BWRT [BrainWorking Recursive Therapy] practitioner'. It's such a mystery why...

Is this one of those where scores out of 10 on a questionnaire are assumed to have a linear, mathematical reality across individuals and groups? So e.g. if a control says their fatigue went from 1 to 3 and a pwME says theirs went from 5 to 7, that's interpreted as showing "no difference" because...

Meanwhile the first letter makes several points which haven't dated at all: The only part that is out of date is his suggested definition of "Functional disorder: an illness for which the clinician has not found an explanation using his/her own frame of reference", since for some clinicians...

I really hope she doesn't end up in a long-lasting crash from trying to "challenge" herself to complete something that's beyond her current limits.

What they're actually asking is can you do these things "safely and without difficulty", or "reliably, repeatedly, safely and in a reasonable time" (the exact wording varies between forms) - those criteria apply for every question. If the process was designed more fairly, the form would repeat...

Plus the new crop (numbers unknown) of people who meet the criteria for an ME/CFS diagnosis but have 'Long Covid' or 'FND' on their records instead.