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    An Open Letter to BACME re ME/CFS Guide to Therapy 2025

    Bridges self-management https://www.bridgesselfmanagement.org.uk/about/underpinning-theory/ The reference for 'one of our recent studies in people with long Covid' is this: https://www.bridgesselfmanagement.org.uk/research/research-projects/listen/ S4ME thread here. (We were underwhelmed.)...
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    The Guardian: 'Long Covid is still here. I know – my life came to a stop because of it' -

    I do wish that '200 symptoms' factoid would die. But journalists seem to love it.
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    An Open Letter to BACME re ME/CFS Guide to Therapy 2025

    The people in charge of local-level ME/CFS and Long Covid services need to see this.
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    FatigueSense app

    "AI"-generated text that creates a superficial impression of authoritativeness based on nothing. Sick people deserve so much better than being patronised like this.
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    Impaired brain intrinsic connectivity in long COVID during cognitive exertion revealed by independent component analysis, 2026, Barnden et al

    Anything interesting to see here? Familiar names among the authors, including some who it has been suggested may have been prone to methodological shenanigans elsewhere.
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    A Short-Term Pacing Intervention in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study in Portugal, 2026, Ribeiro et al

    If they see PEM as an afterthought and not part of the 'symptomatology [and] functional impact', they have no business advising patients.
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    A preliminary proof-of-concept trial on the effects of ketamine on fatigue: a randomized crossover trial 2026 Saligan et al

    Then he honked his clown nose and the wheels fell off his car.
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    A preliminary proof-of-concept trial on the effects of ketamine on fatigue: a randomized crossover trial 2026 Saligan et al

    LOL.
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    Post-exertional malaise and the myth of cardiac deconditioning: rethinking the pathophysiology of long covid, 2026, Charlton, Wüst et al

    This reminds me of the study linked here https://www.s4me.info/threads/miscellaneous-research-thread.43053/page-2#post-673146 'Smartwatch-derived versus self-reported outcomes of physiological recovery after COVID-19, influenza, and group A streptococcus: a 2-year prospective cohort study'...
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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    That's definitely not from The Great Gatsby. People on Metafilter think it originated in a review on Goodreads in 2012 or thereabouts. https://ask.metafilter.com/330717/Who-really-said-it
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    Webinar: PRIME Workshop - How AI/ML methods can enhance ME/CFS molecular or genetic biomarker discovery, Jan 21, 2026, 02:00 to 05:00 PM (GMT)

    Unfortunately I find this sort of thing completely unreadable after the first few lines :laughing:
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    Webinar: PRIME Workshop - How AI/ML methods can enhance ME/CFS molecular or genetic biomarker discovery, Jan 21, 2026, 02:00 to 05:00 PM (GMT)

    On the Youtube page it says: "Our apologies - unfortunately, due to a technical error, the captions file wasn't saved and we don't have capacity to generate them ourselves given the webinar's length." which is a pity, for those of us not able to watch a 2h 38 video!
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    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Moved post Not sure if this is the right place to post this, but it seems something to keep an eye on. https://www.timeshighereducation.com/news/three-uk-research-councils-suspend-funding-opportunities
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    Modulating subjective & objective cognitive state fatigue in long COVID with repetitive anodal tDCS...double-blinded RCT, 2026, Mischke

    Ref 18 is Linnhoff S, Fiene M, Heinze H-J, Zaehle T. Cognitive fatigue in multiple sclerosis: an objective approach to diagnosis and treatment by transcranial electrical stimulation. Brain Sci. 2019 May;9(5):100. https://doi.org/10.3390/brainsci9050100.
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    Modulating subjective & objective cognitive state fatigue in long COVID with repetitive anodal tDCS...double-blinded RCT, 2026, Mischke

    They say: (does that mean they think only severe patients get PEM?)
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    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    This site is selling an "intensive treatment" claiming to deliver "90% recovery" in one week.
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    Associations between heart rate and physical activity in people with post-COVID-19 condition accounting for [ME/CFS], 2026, Adodo+

    It makes me a little suspicious when a paper makes a big deal of a particular statistical association but doesn't tell you the actual data from which it was derived.
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    New book: 'Breaking Free' (PASC: ME and Covid-19)

    Just noticed this book is among the 'useful resources and support' recommended by Gloucestershire NHS now that its post-Covid service has closed. Ugh. https://www.ghc.nhs.uk/our-teams-and-services/post-covid/
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    Psychological symptoms predict long coronavirus disease 2019: a prospective analysis from the Women’s Health Initiative, 2026, Al-Delaimy et al.

    'depressive and anxiety symptoms', i.e. answering yes to items on screening questionnaires like 'do you have trouble sleeping' or 'have you stopped or reduced your usual activities', which might be signs of a mental health issue but also might be signs of many other things.
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    Healthcare Consumption and Work Absenteeism [post COVID]: The Role of Cognitive-Behavioural Factors…, 2026, Verveen, Knoop+

    always the slippery language
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