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  1. Kitty
    Post

    Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise, 2024, Gloeckl, Scheibenbogen+

    I find it shocking. By definition, people who experience PEM are already exceeding their activity capacity at times. The suggestion they should...
    Post by: Kitty, Apr 26, 2024 at 12:03 PM in forum: Long Covid research
  2. Kitty
    Post

    The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland

    Yes, exactly. I too am a fan of the good work he's done, but because people will assume he okayed this, it may work to undermine his credibility.
    Post by: Kitty, Apr 25, 2024 at 5:47 PM in forum: General ME/CFS news
  3. Kitty
    Post

    The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland

    Yes, that's why I read it when I saw it online yesterday. I realise he has a personal investment in the topic, but it seems at odds with the...
    Post by: Kitty, Apr 25, 2024 at 4:22 PM in forum: General ME/CFS news
  4. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Oh, I agree. I'm just trying to second guess the thinking, and the idea of producing something focused on patients' needs and realities might have...
    Post by: Kitty, Apr 24, 2024 at 10:13 PM in forum: ME/CFS research news
  5. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I can see an argument that the clinics may be expected by the NHS to develop these tools, and if they do, the odds on them doing it really badly...
    Post by: Kitty, Apr 24, 2024 at 8:34 PM in forum: ME/CFS research news
  6. Kitty
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I wonder why it's particularly difficult for psychologists, though? In other areas of medicine, any number of long-established practices have...
    Post by: Kitty, Apr 24, 2024 at 4:58 PM in forum: General ME/CFS discussion
  7. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Broadly, there seem to be two problems: The MEA doesn't appear to accept the potential for harm if this tool goes into use as it is. The MEA...
    Post by: Kitty, Apr 24, 2024 at 1:57 PM in forum: ME/CFS research news
  8. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    He may not have been entirely responsible. If someone makes an application to the fund, presumably there is a process they have to follow; if it's...
    Post by: Kitty, Apr 23, 2024 at 10:32 PM in forum: ME/CFS research news
  9. Kitty
    Post

    Trial Report Explanation for symptoms and biographical repair in a clinic for persistent physical symptoms, 2024, Burton

    For ME, and used in this interventional way, it does sound...ugh. The concept itself can be useful; it's sometimes used to describe the process...
    Post by: Kitty, Apr 23, 2024 at 3:55 PM in forum: Other psychosomatic news and research
  10. Kitty
    Post

    Australia: RACGP: GET for CFS

    Well spotted!
    Post by: Kitty, Apr 23, 2024 at 3:33 PM in forum: Other guidelines
  11. Kitty
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Transcript looks great, thanks @dave30th. It's great to have this as well as the video to share—some people prefer one form over another, even...
    Post by: Kitty, Apr 23, 2024 at 1:22 PM in forum: General ME/CFS news
  12. Kitty
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    Yup. Risk assessment for a nighttime wildlife survey: It'll be dark, you might trip over something. There's a lake, you might fall in. If you...
    Post by: Kitty, Apr 23, 2024 at 1:07 PM in forum: General ME/CFS discussion
  13. Kitty
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    One of my worries is that it's actually going to end up being used for trials, when at the outset it was presented as not for use in trials.
    Post by: Kitty, Apr 23, 2024 at 10:57 AM in forum: ME/CFS research news
  14. Kitty
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I'm not sure, you know. I think it's actively encouraged by the political class, and is partly driven by political ideology. Perhaps not the...
    Post by: Kitty, Apr 23, 2024 at 10:53 AM in forum: General ME/CFS discussion
  15. Kitty
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    No, but I like it! :laugh:
    Post by: Kitty, Apr 23, 2024 at 10:25 AM in forum: General Advocacy Discussions
  16. Kitty
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I suspect with the rehabbers (those working at ground level, at least) it's just lack of information. They've gone through a training and a career...
    Post by: Kitty, Apr 22, 2024 at 5:46 PM in forum: General ME/CFS discussion
  17. Kitty
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    I didn't even realise it's so local! But yes, very familiar from childhood onwards.
    Post by: Kitty, Apr 22, 2024 at 5:35 PM in forum: General Advocacy Discussions
  18. Kitty
    Post

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    Unless the muscle's already overused and exhausted, in which case it'll just end up hurting. :banghead:
    Post by: Kitty, Apr 22, 2024 at 12:07 PM in forum: Long Covid research
  19. Kitty
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    PROM-washing (noun) The pretence of recording treatment outcomes, where there is no treatment and therefore no outcomes.
    Post by: Kitty, Apr 21, 2024 at 10:42 PM in forum: General Advocacy Discussions
  20. Kitty
    Post

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Even so, I'm still not really clear how establishing a PEM threshold would be useful. This is because we never normally have the opportunity to...
    Post by: Kitty, Apr 21, 2024 at 9:14 PM in forum: Post-Exertional malaise and fatigue
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