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  1. Turtle
    Post

    Can small fiber neuropathy present like ME/CFS?

    Thank you for your answer. When I'm really heated up before an EMG, does that mean in my simple words, that the nerves are wide open, to let the...
    Post by: Turtle, Apr 22, 2025 at 5:39 AM in forum: General ME/CFS discussion
  2. Turtle
    Post

    Can small fiber neuropathy present like ME/CFS?

    I think a survey might be a good idea. Because SFN is not at all understood, bad things can happen. Last week I had an EMG for possible...
    Post by: Turtle, Apr 20, 2025 in forum: General ME/CFS discussion
  3. Turtle
    Post

    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    Maybe this ship didn't even leave port. The captain and his senior crew were just making waves themselves, by feasting, lots of booze, that made...
    Post by: Turtle, Apr 17, 2025 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Turtle
    Post

    Autoantibody targeting therapies in post COVID syndrome and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Wohlrab et al

    And the winner is??? So awful, having to wait for the answers
    Post by: Turtle, Apr 15, 2025 in forum: ME/CFS research
  5. Turtle
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Could you blame the people testing this in stead of calling the patients "gulluble". I did 10 years of alternative things because there was...
    Post by: Turtle, Apr 15, 2025 in forum: Psychosomatic theories and treatments discussions
  6. Turtle
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Please don't use the broken mitochondria again. It hurts and is very denegrating. Every ME/CFS patient has to find out for themselves what's wrong...
    Post by: Turtle, Apr 15, 2025 in forum: Psychosomatic theories and treatments discussions
  7. Turtle
    Post

    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    Not just rehabilitationist researchers, H. Knoop himself was among them.
    Post by: Turtle, Apr 15, 2025 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Turtle
    Post

    Autoantibody targeting therapies in post COVID syndrome and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Wohlrab et al

    Are (auto)antibodies always bad things?
    Post by: Turtle, Apr 13, 2025 in forum: ME/CFS research
  9. Turtle
    Post

    Physical function and psychosocial outcomes after a 6-month self-paced aquatic exercise program for individuals with [ME/CFS], 2025, Broadbent+

    A few small steps for patients made into giant leap (of disinformation) by GET.
    Post by: Turtle, Apr 11, 2025 in forum: ME/CFS research
  10. Turtle
    Post

    #MEAction Millions Missing 2025, USA campaign - SOS (Save our Support Systems, Save our Science, Save Our Society)

    Good luck and stamina. But also: Take care of @ahimsa too!!
    Post by: Turtle, Apr 10, 2025 in forum: Advocacy Projects and Campaigns
  11. Turtle
    Post

    A Thought Experiment on Muscles

    From experience I know I can always make it home. No matter how exhausted I am, or how much my muscles hurt. And I have done weird things to build...
    Post by: Turtle, Apr 9, 2025 in forum: ME/CFS research
  12. Turtle
    Post

    Use of antidepressants for/with ME/CFS?

    Acquired ischemic mitochondrial myopathy was a term used by Schiebenbogen\Wirth 2024, could there be a connection with ME/CFS?
    Post by: Turtle, Apr 8, 2025 in forum: Drug and supplement treatments
  13. Turtle
    Post

    Protocol Reconceptualizing rehabilitation research via an enactive framework and a radically interdisciplinary cross-analysis... 2025 Levi et al

    :) for you,:banghead: for them.
    Post by: Turtle, Apr 7, 2025 in forum: Long Covid research
  14. Turtle
    Post

    Protocol Reconceptualizing rehabilitation research via an enactive framework and a radically interdisciplinary cross-analysis... 2025 Levi et al

    BPS feel squeezed out, now they want back in.
    Post by: Turtle, Apr 7, 2025 in forum: Long Covid research
  15. Turtle
    Post

    COX-1 inhibitors (NSAIDs/acetaminophen) before activity to prevent/lessen PEM

    The connection prostaglandins - endothelin 1- vasoconstriction (= cold) , ET1 as NO inhibitor. @Hutan Please don't ask me to explain, I don't...
    Post by: Turtle, Apr 5, 2025 in forum: Drug and supplement treatments
  16. Turtle
    Post

    Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al

    You might have given the best description of BPS here.
    Post by: Turtle, Apr 5, 2025 in forum: Other psychosomatic news and research
  17. Turtle
    Post

    COX-1 inhibitors (NSAIDs/acetaminophen) before activity to prevent/lessen PEM

    Many years ago I tried naproxen, it gave me a colon infection. Naproxen for pain relief but more pain as a result. Something that might be...
    Post by: Turtle, Apr 5, 2025 in forum: Drug and supplement treatments
  18. Turtle
    Post

    Preprint Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms, 2025, Tamariz, Klimas+

    Sorry Utsikt! That's prejudice too. All obese people and LC (ME/CFS) patients don't do taxing activities? Less used to pushing through? So why...
    Post by: Turtle, Apr 3, 2025 in forum: Long Covid research
  19. Turtle
    Post

    Preprint Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms, 2025, Tamariz, Klimas+

    Normally I like what you write a lot. Not this post. Why do you doubt that obese and LC (ME/CFS?) patient are trying hard enough. Not getting the...
    Post by: Turtle, Apr 3, 2025 in forum: Long Covid research
  20. Turtle
    Post

    A Thought Experiment on Muscles

    Has brainfog made me dumber? Before I got ME/CFS I was a final year uni student. I had to stop and work as a telefonist because of brainfog. I was...
    Post by: Turtle, Apr 3, 2025 in forum: ME/CFS research
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