Alain Moreau did some work trying to induce pem with a small device contracting the muscle. I can’t remember much more and am too crashed to look...
I know this is probably unanswerable but could a mechanism like this be responsible for treatment resistant nerve related pain with current...
I apparently have both as I get significant pem/malaise/flu like symptoms along with widespread pain and pots. I started off with mild pain and...
I’m glad this is being discussed. I last had alcohol at a party about 10 years ago when my ME was mild. Granted I did have quite a few drinks...
Really surprised Dr Gall is associated with this. He truly believes patients and knows they’re not “mad” yet has been affiliated with a few of...
Thanks for your comments. I’ve found the grant information: https://reporter.nih.gov/project-details/10869779 Development of humanized...
I think their prior research hypothesised that antibodies were potentially reacting to bacterial antigens. Could this be tested for if the mouse...
Shared recently on the WPI Facebook site: https://www.facebook.com/share/p/LqnDkLQRGktPubRD/?mibextid=WC7FNe “Vincent Lombardi, Ph.D., to...
I would agree that the mechanisms going on are likely complex. How can we explain the significant dependent acrocyanosis seen in many people with...
Indeed there is this contradiction in the data. Is it an oversimplification to think you can get peripheral vasoconstriction so poor perfusion of...
I may be wrong here but I thought Dr David Systrom’s invasive CPET findings were quite interesting showing poor systemic oxygen extraction in a...
Total n=1 experience here but my ME looked like it was triggered by a HHV-6 reactivation when I was 12 years old. I had a rash all over my torso...
I find this fascinating. I have painful bladder syndrome and widespread body pain/constant migraines in addition to my ME and PoTS. I’ve often...
I’m awaiting my results for sodium channel mutations which has taken nearly 2 years to come back due to a paperwork mix up. I’m not sure how it...
I found this comment by Kaufman particularly depressing and offensive without evidence: “Then there’s the profoundly disabled, mostly bedbound,...
To me it doesn’t make sense how he thinks long covid if caught early on can be reversible yet ME/CFS can’t. They have no treatments yet for long...
Posts moved from Long Covid in the media and social media I wanted to refer back to the article on page 6 of this thread that’s been on my mind...
A newly set up long covid children’s clinic at my neighbouring large teaching hospital trust....
I have just come across a YouTube video published on the 8th November entitled: ‘ME/CFS and Long COVID: A Discussion between Dr. Avindra Nath and...
I’ve had burning eyes as my ME, FM and PoTS has gradually progressed over the years. Nobody has ever explained this to me. Although I’m aware that...
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