Thank you for sharing this. ”Enduring” by Niko S was deeply moving and it resonated with my own experience. It never ceases to amaze me how alike...
I wish they had adressed PEM in the abstract. Since PEM is the most debilitating symtom it is very important to know how staying awake more...
The sad part is that while the couple were heavily advertising brain retraining, I’ve had many people tell me I have to try this as well....
No, none.
In Sweden there is a fairly famous influencer who advertised brain retraining. Her husband has ME/CFS and her Instagram is full of posts about the...
”new recommendations for diagnosis, assessment and treatment of ME in Denmark will be drawn up” Very good news. I am keeping my fingers crossed...
I am living proof that fear, deconditioning and avoidance have nothing to do with ME/CFS. I have been assesed by 5 different psychologists...
I loooove coffee, I used to drink 1-2 cups per day, but since becoming severe, I am histamine intolerant and coffee causes a big skin reaction. I...
Very well put!
All I can say is that I have lived with this poisoned feeling since January 2011. Until I joined the ME-community I never met anyone who...
This is extremely dangerous. It’s what leads to lives being destroyed.
I was diagnosed with ”utmattningssyndrom” (exhaustion/burn out syndrome) for 11 years, before finally coming to Bragée ME-center and receiving the...
”We’re running clinical trials in the US, recruiting 1,000 ME and long COVID patients to clinically validate these new diagnostic & therapeutic...
Such amazing, absolutely amazing news! He’s been to hell and back for so many years. (Upon seeing this, my first thought was ”Maeve”. )
This is exactly my understanding… They forgot ME/CFS.
This article could have been about me. So many details are exactly the same. It’s scary…
If Buhrman had an ounce of integrity she’d donate her research money to Jonas Bergquist. Or to the Swedish Post Covid Association who are doing...
Imagine the honor, the privilege and the immense good fortune to work at Uppsala University, and use that to literally shit all over the suffering...
I fall asleep very late and I am wired but tired, even more than usual.
I was mild for many years before becoming severe. To me, both mild and severe feel like the same disease. The profound sickness, the intolerance...
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