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Some good news from #MEAction for folks in the USA: More great news! Telemedicine has been extended!

#MEAction also reported on this on their website: https://www.meaction.net/post/senate-tells-nih-develop-plan-to-implement-me-cfs-research-roadmap

Congress Tells NIH: Develop Plan to Implement ME/CFS Research Roadmap #MEAction Letter to NIH (PDF file) Edit: Here's the thread #MEAction posted on Bluesky (pretty much the same info)

Article from Wiki Education: https://wikiedu.org/blog/2026/01/29/generative-ai-and-wikipedia-editing-what-we-learned-in-2025/ The article also lists a few areas where chatbots can be helpful. The article does not mention several of the issues related to chatbots, such as consent (for...

(we were making some adjustments so I ended up skipping last week's post about social media) News in brief posts for the week of Jan. 26 - Feb. 1: Bluesky news post Mastodon news post

Keep the Light - Community Gathering Sunday, February 1 3:00 - 4:00 PM Eastern Time Registration link (Link shows time in your time zone)

ICE Makes Me Sick: Fund Healthcare, Not Violence Article about an advocacy campaign which demands that the U.S. Congress "stop bankrolling ICE violence while slashing our healthcare and home care." This action is created by #MEAction and co-sponsored by Long COVID Justice.

New video from Solve ME: "What's New in ME/CFS? Interview with Manuel Ruiz Pablos" (video is in Spanish -- see subtitle instructions on YouTube) The Solve ME website has posted comments on this video here: This Week in “What’s New in ME/CFS?”: A Q&A with Manuel-Ruiz Pablos

Online Support Group from Bateman Horne Center: Topic: Coping with Depression and Emotional Overload Tuesday, February 17, 1:00 pm - 2:00 pm MDT 8:00 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone)

"Coffee" with a Clinician, from Bateman Horne Center: Topic: Assessing Impaired Function (Clinical Evaluation) Wednesday, February 11, 10 am MDT (9 am PT / 11 am CT / 12 pm ET) Featuring: - Jennifer Bell, FNP, and BHC Provider - Sallie Rediske, MPT, is a medically retired Physical Therapist...

Online Support Group from Bateman Horne Center: Topic: Chronic Illness: Facing Limits and Losses (Moving through Grief) Tuesday, February 3, 1:00 pm - 2:00 pm MDT 8:00 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone)

This Mayo Clinic web page shows a "last updated" date of Jan. 17, 2026: https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490 Does anyone know what was changed? I don't know how to find that info.

Blog post from Bateman Horne Center: Physical Therapy Must Catch Up: Teaching ME/CFS is No Longer Optional

California joins UN health network following US departure from WHO Press release from the California governor's office: Governor Newsom meets with World Health Organization Director-General, announces California becomes first state to join WHO-coordinated international network

MEAction article talking about the current conditions in the USA: When Care is Threatened, Community is Our Strength They are asking folks to join the "Freakin’ Frail" campaign to protect Medicaid access for people with ME/CFS and Long Covid. The first step is to sign their letter to the HHS...

News in brief posts for the week of Jan. 12 - 18: Bluesky news post Mastodon news post

January 12 article from FAIR (Fairness & Accuracy In Reporting): Media Baffled by Wheelchair ‘Miracles’ Because They Don’t Understand Disability (some line breaks added) The article mentions Long Covid, ME/CFS, and POTS (probably meaning orthostatic intolerance, but POTS is often used in news...

A recording of this webinar has been posted on the Solve ME YouTube channel:

Severe people may hold answers to Long COVID. They must be included in research. After giving several examples of research projects that have included more severe patients, they made these comments:

Okay! "Pay no atttention to the volunteers behind the curtain" :)