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In the U.S. there is something called the All of Us Research Program which stores electronic health records and does sequencing on most participants it seems. I wonder if any data there would be able to be used already? It seems like the program has ~13,000 ME/CFS patients. I haven't looked into...

Does anyone know about the status of SequenceME? Have they raised funding or started at all?

Unless I am missing something, I'm surprised that I don't see any references to any exercise studies on ME/CFS and when it talks "about the safety of exercise training" with PEM it references "other populations with similar symptoms" then lists studies of people after bedrest/space flight, and...

Just to clarify, I’m not advocating CBT as a treatment for ME/CFS or SLE. I share many of the concerns raised here about how it's used and the quality of the evidence behind it. What I was trying to explore is whether SLE, where CBT is being studied to be used to support patients but not...

I’ve been wondering whether it’s helpful to compare how cognitive behavioral therapy (CBT) is used in systemic lupus erythematosus (SLE) and in ME/CFS. Both are complex, multifactorial chronic illnesses. Adverse childhood experiences are also thought to increase the risk of developing SLE, and...

Just wanted to share this article I came across from the Mayo Clinic written in 2023 about Central sensitization: https://pubmed.ncbi.nlm.nih.gov/37011956/. I think it provides a good overview of their perspective on the topic.

Hello! I'm new to the forum and wanted to share something that might be of interest. Not sure if this has been talked about before but I found that the NIH is inviting public input on its draft Strategic Plan for Disability Health Research (FY26-FY30) to shape future research on disability...