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  1. fivetowns
    Post

    ME/CFS might be caused by defects in cellular housekeeping

    I've often wondered about something very similar - that the delayed 24hr + PEM we see in the condition is due to some regulatory processes (like...
    Post by: fivetowns, Jun 22, 2022 in forum: Possible causes and predisposing factor discussion
  2. fivetowns
    Post

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    I'm 90% sure they backed LP purely because the guidelines recommended against it.
    Post by: fivetowns, Nov 2, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  3. fivetowns
    Post

    Fatigue in psychosis, 2021, Poole-Wright, Chalder et al

    There's also the possibility of patients with psychosis having fatigue from an additional health problem but it being put down to their mental...
    Post by: fivetowns, Jul 16, 2021 in forum: Other health news and research
  4. fivetowns
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Inside health on Radio 4 had an episode on Long Covid yesterday. I didn't catch all of it but the bit I did listen to involved a patient of the...
    Post by: fivetowns, Feb 17, 2021 in forum: Long Covid news
  5. fivetowns
    Post

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    It could be but I think it's unlikely seen as I checked today and she still isn't listed on the staff profiles for the department on KCL website....
    Post by: fivetowns, Jan 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. fivetowns
    Post

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    I thought read through this whole thread today but it looks like @Jonathan Edwards had already pointed out that: So the researchgate profile...
    Post by: fivetowns, Jan 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. fivetowns
    Post

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    Thanks I'll take a look. Apologies for the rambling nature of the above posts. I hadn't realised quite how brain fogged I was when I wrote them!
    Post by: fivetowns, Jan 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. fivetowns
    Post

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    Forgot to mention that on the systematic review it states that Aston and De Rijk work at KCL If they don't it could be considered research fraud....
    Post by: fivetowns, Jan 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. fivetowns
    Post

    Explore - A Systematic Review of The Evidence Base for the Lightning Process - 2020 - by Phil Parker et al

    So I found a profile for Jacqueline Aston on researchgate.net that states she works in the department of Psychosis Studies at King College London...
    Post by: fivetowns, Jan 28, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. fivetowns
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sorry I couldn't work out how to embed a retweet so I've taken a screenshot. Karim Khan retweeted part of Peter Whites commentary on the talk.
    Post by: fivetowns, Jan 15, 2021 in forum: Long Covid news
  11. fivetowns
    Post

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    The thing that really gets me is that NICE has been using the GRADE system since 2009. If as they argue it unfairly downgrades the evidence base...
    Post by: fivetowns, Dec 22, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  12. fivetowns
    Post

    Claire Fox (Fiona's sister)

    Ugh I just saw this in the guardian today Not good for us considering her links to the SMC and public stance on PwME ☹️! Edit: Fixed quotation...
    Post by: fivetowns, Aug 1, 2020 in forum: Other health news and research
  13. fivetowns
    Post

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    I did a quick Google of the use of the term "secondary gains" in relation to illness. It appears to be a term taken from psychoanalysis (Freudian...
    Post by: fivetowns, Jun 23, 2019 in forum: Other psychosomatic news and research
  14. fivetowns
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    [MEDIA] Sorry about interrupting the academic debate but I just saw this on twitter and figured we could do with the laugh!
    Post by: fivetowns, Jun 19, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. fivetowns
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    [MEDIA] To add insult to injury it looks like the theme of this special issue the article is to appear in is 'psychosomatics'. (I'm trying to...
    Post by: fivetowns, May 30, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. fivetowns
    Post

    'Activist Editor' Richard Horton of The Lancet receives $100,000 Roux Prize

    He's not just tweeting about Richard Horton; It seems Sharpe got up this morning and decided that being patronising to random people using the...
    Post by: fivetowns, May 21, 2019 in forum: Other health news and research
  17. fivetowns
    Post

    'Activist Editor' Richard Horton of The Lancet receives $100,000 Roux Prize

    I would say it's unbelievable but sadly this kind of thing doesn't surprise me any more. Funny how "activist" becomes a good thing to be when it's...
    Post by: fivetowns, May 20, 2019 in forum: Other health news and research
  18. fivetowns
    Post

    General news about Fabricated and Induced Illness syndrome (FFI)

    Adverse Childhood Experience
    Post by: fivetowns, May 7, 2019 in forum: Other psychosomatic news and research
  19. fivetowns
    Post

    TheWEL courses - David Reilly

    The website doesn't inspire any confidence in the course (but the new age drivel is quite entertaining). Here are some extracts for anyone that...
    Post by: fivetowns, Apr 19, 2019 in forum: Other treatments
  20. fivetowns
    Post

    Trial By Error: Letters to Fiona Godlee and Nigel Hawkes

    CBTmasons? They have the all the cultish, secret handshake, favour for a favour cronyism of the masonic lodges- all they are missing are the funny...
    Post by: fivetowns, Apr 17, 2019 in forum: General ME/CFS news
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