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    Reply from Nice

    Well we should mark the day of notsonice conference in our diaries in case things don't improve and we want to do a trip out together (if able)
  2. T

    Low dose hydrocortisone as a treatment for ME/CFS

    No, homeopathic version, maybe started out as that, but diluted millions of times, from pig glands I think
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    UK - Discussion of how many patients use NHS ME/CFS clinics

    How can most people get diagnosed by specialist clinics? There are hardly any. Gps, and all sorts of specialist diagnose and misdiagnose. It's a fiasco, they can't even agree on a name. Goddess help you if a psychiatrist gets hold of you, they will say your diagnosis is wrong, you have mus...
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Cock up or conspiracy? Participate or boycott? Many doctors, including some of our heroes are running scared and don't to shout too loud, trying to be reasonable. This is a war. Mild reason will not help us, though there is a place for it. I think it's going to get very messy. Shame most of us...
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    Low dose hydrocortisone as a treatment for ME/CFS

    I have been taking homeopathic cortisol and adrenal something from pigs?! I think it increased my resilience/stamina a bit, but didn't last, could be placebo.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Dr William weir is also applying. He probably sees more bed bound and housebound patients than most, and knows his stuff
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