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  1. Liie

    The Prevalence of Medically Unexplained Symptoms in Emergency Neurology Service 2026 Ernoić et al

    Oh, "functional neurology interventions"! This must be something new and exiting, right?! It's definitely not just CBT, right?
  2. Liie

    The Stigma of self-report in health research: Time to reconsider what counts as “Objective”, 2026, Alwan

    Is this a pleading that long covid and ME/CFS should be taken seriously even if there are not reliable objective signs yet? Or is this an argument that psychology research should be taken seriously even if it consists of poorly blinded studies with subjective outcome measures, in the same...
  3. Liie

    Academic critique of the "functional" concept

    Yes, I also think that part was a bit confusing. Maybe the authors are not aware of how the term "biopsychosocial" has been used to simply camouflage psychosomatic theories, in the same way as "functional". When I myself first saw that term I thought it sounded okay. That for example it could...
  4. Liie

    General thread on functional disorders in Sweden

    It seems like some of the proponents of "functionalism" in Sweden works as independent consultants that "educate" healthcare organisations about functional conditions. They basically seem to make money convincing doctors that functionalism is real. Judging from their web sites that seems to be...
  5. Liie

    General thread on functional disorders in Sweden

    Yet another presentation about functional things for health care workers in Sweden: This is a large one with 153 slides. I mentions ME/CFS as a functional condition. This time it is Carl Sjöström who is the guilty party. https://stokapsykkonsult.com/2025/01/23/fns-ostersund-250123-24/ Carl...
  6. Liie

    Oslo Chronic Fatigue Network

    Yes, that's a good idea. I actually thought about that. But few of our Swedish friends are on that one. It's only Elin Lindsäter that I recognise.
  7. Liie

    Academic critique of the "functional" concept

    I have for a long time been wondering about academic criticism about the term "functional" from withing medicine itself. The psychosomatic proponents try to launch this distinction between "functional" and "structural" aspects of the body. This seems to clearly be just a way to obscure the fact...
  8. Liie

    READ FIRST: Welcome to the MEpedia subforum!

    I just want to say that MEpedia is a fantastic resource. Big thanks to everyone who have worked on that! I often feel a strong impulse to collect information that I come across. I should think about whether I can add such information to MEpedia.
  9. Liie

    Oslo Chronic Fatigue Network

    Is there a full member list for the network available somewhere? All I kind find is the People page with the steering group. Edit: I am especially interested in whether our functional friends in Sweden are formal members. For example the authors of the functional article in Läkartidningen from...
  10. Liie

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Some information found trough a web search about the B12 antibody which this article seems to be about: https://en.wikipedia.org/wiki/HLA-B12 https://en.wikipedia.org/w/index.php?title=IgG1-b12 https://absoluteantibody.com/product/anti-hiv-1-gp120-b12-mt12/ This text seems to support the...
  11. Liie

    FND Nope

    @cstruter I didn't notice any sign on your website that it is made with some blogging framework or content management system, such as Wordpress. You coded it all from scratch, didn't you!? Impressive. :) Is it made with ASP.NET and Angular?
  12. Liie

    Canada - Unknown brain disease in New Brunswick

    Article in BMJ. Paywalled. Canada reopens investigation into mystery neurological illnesses https://www.bmj.com/content/388/bmj.r168
  13. Liie

    Canada - Unknown brain disease in New Brunswick

    I wonder how many of those patients that really had dementia or cancer. Was is most of them? Or was it only 2, and they slapped a FND diagnosis on the others? And what about the other at least 175 patients? (I will not dive deeper and try to find out. I will for once try to conserve my energy.)
  14. Liie

    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    I think the introduction with information about historical cases was a good framing. I think that conveys some kind of credibility for people who are not familiar with the topic. It refutes any notion that this has to do with some kind of "age of diagnosis" or anything like that. Maybe that can...
  15. Liie

    Do you feel worse, better or the same when you wake compared to when you went to sleep?

    I sleep pretty well. I usually wake up a couple of times every night, but usually re-falls asleep quickly again. I don't know if that is related to ME/CFS. I wake up feeling refreshed. Sometimes I feel healthy and energetic for 30-60 minutes. Then the fatigue returns and gets progressiveness...
  16. Liie

    A thread to share your experiences of orthostatic intolerance - problems being upright.

    Thanks for your input! It's interesting to hear that your experiences are similar. I will start taking huperzine supplements shortly. If that doesn't help I will try to get a prescription for pyridostigmine or ivabradine.
  17. Liie

    Well-known, famous people with Covid-19 and Long Covid

    https://www.biowell.health/therapies/ Experience the transformative benefits of bio-stacking and try all four of the following therapies for only £150 1 x Cryotherapy 1 x HBOT 30 minutes 1 x Red Light therapy 1 x Compression therapy
  18. Liie

    Enduring symptoms: A call to immediate action, 2025, Barnes

    I find this comment exceedingly well-written. I don't really have an opinion about the subject-matter but I immediately like the writer. Maybe it is this Maree.
  19. Liie

    A thread to share your experiences of orthostatic intolerance - problems being upright.

    I have the objective signs of POTS, that is, raised hearth rate by more than 30 BPM when going from lying down to standing. But I don't have any clear subjective symptoms. No vertigo or dizziness or unpleasant palpitations or feeling like I'm about to faint. So the condition doesn't bother me at...
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