Search results

  1. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Another possibility: Henderson fuses with only 5-10 pounds of traction because he doesn't first do an ICT test. If he did use the ICT first, he might choose to fuse with more traction. Under how many pounds of traction does Dr. B. fuse? This could be a great question to ask Dr. B. and could...
  2. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I would encourage everyone to do their own research. My standards for choosing a neurosurgeon are quite high. Other people's standards may differ. The "wider universe" of neurosurgeons are not ones who I can personally recommend, having done extensive research. I have seen them make too many...
  3. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I responded to that just a few minutes ago. See my reply, above: Here. Informed consent is another reason for carefully choosing a neurosurgeon. If you choose to go to a neurosurgeon who does not fully inform you of the potential risks of surgery, then that should give you pause. I would not...
  4. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    No, that is a misunderstanding, thanks for raising this point. To clarify: When CCI occurs as part of a high-impact traumatic accident, it is recognized and treated on an emergency basis by neurosurgeons skilled in skull base surgery. This has been the case for decades. When CCI occurs in the...
  5. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I had those above symptoms. They resolved with my fusion surgery. When one's autonomic nervous system (CCI / brainstem compression) isn't functioning properly, the immune system can also malfunction. I had a post-viral onset of ME/CFS, as did Jen.
  6. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hello @Michiel Tack - You have repeatedly stated on multiple social media platforms that there are no scientific articles that describe CCI as resembling ME/CFS. You wrote: Here are some articles that demonstrate CCI symptoms and ME/CFS symptoms overlapping. In Henderson’s most recent...
  7. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Mattie had POTS. He discusses this in more detail, here: Interview with Mattie.
  8. Jeff_w

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hello, @Michiel Tack - You've compiled and synthesized an impressive amount of information here. Well done! I'm going to add my own thoughts to the information you've presented here, piece by piece. It is true that this surgery limits a patient's range of motion by roughly 30%. That being...
  9. Jeff_w

    Jen Brea: My ME is in remission

    Same. Cheers, Everyone! www.MEchanicalBasis.org
  10. Jeff_w

    Jen Brea: My ME is in remission

    That is because the text is embedded in the articles themselves.
  11. Jeff_w

    Jen Brea: My ME is in remission

    I personally find PubMed to be outdated. I entered a search on Google Scholar using those same search terms. I turned up 1,300 results.
  12. Jeff_w

    Jen Brea: My ME is in remission

    It actually could explain it, given that CCI occurs as a result of hypermobile ligaments of the craniocervical junction. Women are far more likely to have ligament laxity than men are. Furthermore, men generally have more muscle mass supporting their neck and head, thus mitigating against the...
  13. Jeff_w

    Jen Brea: My ME is in remission

    It was pretty horrendous. Dizziness, nausea, light and motion sensitivity, and a PEM crash afterwards.
  14. Jeff_w

    Jen Brea: My ME is in remission

    Yes, this non-surgical method does exactly that.
  15. Jeff_w

    Jen Brea: My ME is in remission

    Jen would concur. Six months prior to her fusion surgery, she underwent thyroid surgery, under anesthesia. She emerged from it much worse. You make a very reasonable point, but one could also argue this point regarding ME specialists. At one time (and perhaps even now), there was only a small...
  16. Jeff_w

    Jen Brea: My ME is in remission

    Much appreciated, Dr. Edwards. Mattie is also better. Indeed. The first step is a case study. An MD, Jen, myself, and one other patient are involved in this. The second step will be a study testing for the presence/absence of measurable CCI-related brainstem compression in people with ME. A...
  17. Jeff_w

    Jen Brea: My ME is in remission

    I had a complete recovery from severe ME, following my CCI surgery. The biggest barrier I faced to getting my CCI diagnosis, and thus surgery, was doctors. Precisely. I was actively discouraged, told by many doctors that I couldn't possibly have CCI, or even if I did have it, CCI couldn't...
Back
Top