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Mum lived with the CLL type of Leukaemia for 25 years, though she died from something else at age 78. Every now and again her haematologist would ask for the JAKi test. I never understood what that was. Her "fatigue" was similar to my own with CFS. It was like a much milder form of the same...

Taking cortisol did not help me. I find it weird how they are retesting old theories with small numbers of patients

The trial is useless if they did not titrate doses. 6mg is too much

I have a theory that there are a few types of CFS. One type is from an autoimmune disease attacking the mitochondria, Second type is mechanical cause of ME like in CCI Third type is non autoimmune but also involves ATP and mitochondria being messed up by chemicals or radiation. Just not with an...

https://www.mdpi.com/2075-4426/13/11/1562 Neuropsychiatric Manifestations of Mast Cell Activation Syndrome and Response to Mast-Cell-Directed Treatment: A Case Series MCAS paper mentioned by Dr Kaufman. It is amazing. One case talks about MCAS causing psychiatric illness then later developing...

This was me too

LDN should be first because it has been around unofficially for a long time now. low dose Abilify, then Suramin and Mestinon. The first two drugs already have trials. Abilify has been tested on 101 patients and they just need to repeat that with placebos

Perhaps not many of her patients have covid because they aren't well enough to go out a lot. I saw Dr Myhill back in 1996 and her treatment then caused permanent worsening. I worsened badly on her Biocare supplements. She ignored that. I also reacted badly to her EPD injections. I have since...

There is an interesting bit of news on the NCF page. https://www.ncf-net.org/ The link from December leads to an article about a patent issued by Dr Kenny DeMeirleir for the increase of asparaginyl beta-hydroxylase (ASPH) in the cells of patients. It's in the link title " NCF appeals to...

That was chilling.

Have you tried them and did they help?

Yes It could be the result of possible immune system behaviour alterations caused by ME. I don't know enough about the subject. I read that alpha particles are used in "Targeting alpha particle therapy" where in cancer alpha particles are injected in a tumour because they will destroy that...

I read in the last CFIDS Foundation newsletter that they think research points to ingested or inhaled alpha particles causing CFS. My Mum had a non cancerous growth either in or near the mouth as a child. In the early 1950's they gave her radiotherapy for it. My Mum is now 76. So I...

@BruceInOz The CFIDS Foundation says that it is from ingesting. They say it can occur through the air but most likely through drinking water. There is an association of ME with cancer. I don't know if it is strong association or not. I found it in the links below. Also there is a small subset...

Not much and what there is is circumstantionial but here it is: A paper saying that bystander effect in radiation is more complex then previously thought. I assume it means you don't have to be living near a nuclear facility or in a fallout to get this...

True but they have done no epidemic studies on ME and they don't even have a proper serious definition. One of the definitions does not even have Post exertional malaise as a symptom.

alpha particles according to the CFIDS Foundation

Alpha particles. At least that is what the CFIDS Foundation say. I am not really connected to them. I just post a lot of articles from them on the facebook page. I also try to find stuff on the web from other sources. It just interests me as a subject. I thought it was a shame that there was...

Merged thread I started a facebook page to collate any newspapers articles or research that lend evidence to the theory that ME or "CFS" is caused by radiation. I try to make it clear on the facebook page that it is presently only a theory that the CFIDS Foundation came up with. I am not...

It did not help me