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  1. saranbonser
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Thank you. Obviously I won't be responding to discussions, but I'll be reading as much as I can.
    Post by: saranbonser, Nov 9, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  2. saranbonser
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    We still don't have a community paediatric nurse but meetings are going ahead.
    Post by: saranbonser, Apr 5, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  3. saranbonser
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    So sorry to hear about your daughter. My wonderful mum has put me in touch with the relevant people from a parents group she's in, thank you though!
    Post by: saranbonser, Feb 12, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  4. saranbonser
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you, I'm looking forward to working with both of you! And my mums excited about being called ace, haha x
    Post by: saranbonser, Feb 12, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  5. saranbonser
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Hi everyone. I know there hasn't been any chat about who us mysterious lay members are in a while, but I thought I should respond to some of the...
    Post by: saranbonser, Feb 10, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  6. saranbonser
    Post

    UK Parliamentary debate today - Thursday 24th January 2019

    Very lucky to have him as my MP. He's a good one.
    Post by: saranbonser, Jan 24, 2019 in forum: General ME/CFS news
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