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Enormously grateful to the DecodeME team and all the researchers, advocates and patients involved. This is such fundamentally important work that can now be built on. The entire process-as a patient-was very thoughtful in design—with regular updates and information, even including the email...

Fascinating stuff. I hope the concerns that @DMissa has noted can be answered, that would be really helpful. It feels very on-form that the tenacity of a single patient is a large reason this study progressed/exists, by the sounds of it (maybe I’m misreading that). Look forward to reading the...

Yep, that’s it! With the infected cells likely ‘gone’—per the hypothesis—thanks to the adaptive immune system. With regards to the preliminary IFNa results in the plasma, as it says in the video they are looking into why this may be/some of the potential reasons for the outliers etc. Needs...

Hey Hutan (and everyone), This is almost perfectly correct bar one thing (and to be fair it is not explicitly mentioned)-the Itaconate Shunt hypothesis here is suggested to affect non-infected cells. The hypothesis suggests that the infected cells are likely to be cleared by the adaptive...

It would be interesting though I imagine cell lysis would be an issue. But, and this is a BIG but, if this is correct, if this is what is happening in-vivo, if the mentioned compounds work in-vivo, and if the offending molecule(s) causing the impedance signal are removed or attenuated (these...

This is a really good point Simon. I'm wondering if this is because of cellular damage that has occured to the ME/CFS cells, possibly over time even if it's short, whereas the healthy cells are more 'resilient' having not been in that environment but transplanted so to speak-maybe higher levels...

Yep, that's true. I'm hoping he can have access to more resources and funding. I'd personally love to see a collaborative with funding with Prof. Davis. I think they're attuned to similar things. B

Awesome blog @Simon M , as usual. Thanks for all your hard work. @Sean As far as other teams working on something in the blood, I believe Bhupesh Prusty is. The more the merrier. I want it to be a (controlled) race to find out what is causing this. That's presuming the nanoneedle is valid, and...

Thanks so much for your support guys, I think OMF ended up at number 6 most viewed (out of 350+ I believe)! Ben

Hi guys, I thought I'd try and address some points raised here. A lot of the points by @wigglethemouse and @rvallee are spot on, so I don't need to clarify too much. The 'opening' of OMF in Europe is simply an expansion of what has happened in the US. It's the logical next step and a while...

Thank you guys so much. I think OMF are still in the top 10 with a day to go... Ben

Hi guys, Thanks so much for posting this. I didn't know this project even existed until a few days ago so I did my best in very limited time. Hopefully OMF can get some of the funding (I have no idea how it is split but I believe OMF were in the top 10 videos watched earlier!). If you can and...

Nope. That's the initial rough fabrication price and knowing Ron, somehow he'll probably get that down further. B

Very happy and grateful for these grants, there are some seriously good researchers here, particularly interested in Michael Van Elzakker and Amy Proal's work as well as the endothelial function investigation. Great to see researchers from many different parts of the globe. B

Hi guys, For those that missed it or were not able to watch it I summarised some of the points from the video on Twitter: 1.) For those of you not able to watch Ron speak, they are developing a $200 dollar instrument to look at the plasma/what's in blood as current $30,000 machine only enables...

Ron: (All threads). B

Robert Phair: B

I found it fascinating, but I am a tech junkie especially when it has application. I would like to see this in us severes and v. severes whose symptoms do not fluctuate much, if at all. B

Mike Snyder: (Again a thread, a really great talk, Mike is a fantastic speaker). B

Juan Santiago Amazing talk, need about 8 Guinness now, so much info, so little time! B