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But it appears that there will be no inquest, according to this thread of tweets:

Sincere apologies for this delay - I have had to be absent from SfME a lot in last 6 months Please contact our Admin at melocalnetwork@gmail.com if you are a Group Leader/representative of a local M.E. Group in the UK and would like more information on the current work being undertaken by...

“People with ME/CFS deserve the most appropriate treatment and to be confident that the NHS can offer that treatment. I recognise that care for people with ME/CFS has varied widely, and in the worst cases has left some people feeling that their illness is not recognised by the health and care...

I will try at some point. Currently I am struggling to even follow my saved threads on the forum - in a generational ‘sandwich’ position as a joint carer, whilst still trying to stay within my own physical capacity :nailbiting:

If you mean Commissioners who look into the services to be provided by each individual ICB (Integrated Care Board) (in England) or Health Board (in the Devolved Nations), then no. Every region now has to work out its plans to spend its budget in the best way for its local population...

it is 14:00 Friday 9 August, per Sarah Boothby’s tweet “…GP Surgery and both divorced parents). HMC is taking time to reflect on the evidence and refer to relevant inquest law before concluding. Conclusion will be read into the public record at *Devon Coroner's Court 14:00 BST Friday 9...

perhaps also @MEMarge might know? Only from having re-read Bob’s experiences today :emoji_disappointed_relieved: https://www.s4me.info/threads/bob.1068/page-9#post-176284

U.K. ME/CFS Biobank has always held a supply of ME/CFS, MS and Healthy Controls bloods to supply for various studies (just from my knowledge as a retired participant)

Many thanks for your response @Andy I asked both members to use the “contact us” details to check their applications with the team.

@Andy Is there an upper age limit please? Everything I’ve seen just says ‘over 16’. A member in my local group is implying that she wasn’t accepted because she is in her 70’s and I didn’t think this was correct.

In my n=1 experience, I can date both my infections to the day 25 June 2001: Unknown virus caused a severe reaction whilst on my lunch break at work. Had to be collected to be driven home. Eventually diagnosed PVFS (November 2001) Extremely debilitated, unable to drive, enforced rest, even...

Although the planned discussion on Gender Bias did not take place today, Sky News Breakfast did show Sky’s Science and Technology reporter Tom Clarke’s piece on DecodeME. (At approx 08:50?) Unfortunately it was somewhat spoilt by the large banners across the screen labelling the condition as...

A number of us on twitter/X are comparing notes as we need hard copies to even start reading the consultation. We emailed the ME/CFS unit as above (11 August) but no-one has received their copy in the post yet. Of course a delay may have been caused by a lack of physical copies ready to be...

Thread Reader of Elisa’s tweets: https://threadreaderapp.com/thread/1687811520850182144.html

Thanks both, I have just been acting as an go-between to try to get this deleted. The Trust has found no live content linked to it so the PDF is going to be deleted and it should disappear very soon.

@Sly Saint Are you able to provide me with the website link to the “google treatment for ME” that you used, where you located this file please? The clinic cannot locate the pdf on their website but would like to correct this mistake if you are able to point them in the right direction of where...

If you are in the U.K., check out what domiciliary dental care there is available in your region? I am aware of a couple of friends who have used our County-wide Dental Specialist service locally but am not sure to what extent the home service would be able to provide absolutely everything that...

Hope this Token works: https://www.thetimes.co.uk/article/e36f0862-f4cc-11ed-99c7-9412839daee7?shareToken=6482011779dc1135989a6d20c292f7b7

People with ME are working hard to ensure the patient’s voice and the reality of the lived experience is heard in Bristol…..

Begs the question: Why didn’t the study just use a Hand Grip strength measurement? That would have provided some physical evidence of a decline in ability for people experiencing PESE.