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  1. E

    Coining a term for being limited in your interrelated energy and time.

    exertion intolerance: exertion as in physical, intellectual or emotional intolerance as in gluten or fructose intolerant: not too much, not too much at once
  2. E

    Why is ME/CFS getting so little research funding?

    I am not so convinced of that. I remember when the IOM report stated in 2015 that it was a serious medical, not psychological disease, that it was presented as a historic step for the disease. Implicitly, this indicates that mainstream opinion previously was different, even in the US.
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    Low-dose naltrexone as a treatment for chronic fatigue syndrome, 2020, Bolton, Chapman, Van Marwijk

    "These case studies are presented in the hope they will lead to randomised clinical studies defining the role and dose of naltrexone in treating people with chronic fatigue syndrome and myalgic encephalomyelitis compared with usual care or placebo. However, as naltrexone is out of patent...
  4. E

    EU Petition 2019 - opportunity to lobby for funding for ME research

    the new Fatigue Centrum in Berlin (Prof Dr Carmen Scheibenbogen) https://cfc.charite.de/#c30483336 Quadram in Norwich https://quadram.ac.uk/targets/me-cfs/
  5. E

    SMCI RAMSAY 2018: “Characterization of Janus kinase (JAK) activation profiles in ME/CFS subgroups”, Lombardi

    Is this the kind of drug that could be tested in the nanoneedle array of Ron Davis? Just curious, no idea...
  6. E

    Open Medicine Foundation (OMF)

    The texts the OMF has translated by volunteers, are meant for a broad audience and are not technical
  7. E

    SMCI RAMSAY 2018: “Characterization of Janus kinase (JAK) activation profiles in ME/CFS subgroups”, Lombardi

    Is there any news on this trials? Or when is some news expected?
  8. E

    News from Belgium

    Yeah, let's hope this is a reflection of true Belgian surrealism: announcing a new policy while assessing and extending an existing convention. Or is it a new convention, who knows, hard to tell without any publication open for the public!
  9. E

    News from Belgium

    @Michiel Tack Do you really believe the policy in the UZ Leuven has changed? I don't get why the speech of the Minister (new criteria, no GET anymore) doesn't fit with the website of the UZLeuven itself (cf https://www.uzleuven.be/nl/fysische-geneeskunde-en-revalidatie/cvs, update 19/06/2018)...
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