Mr Aternatively we explain away physical illness as difference or struggle.
Yes there is a video online helping to distinguish this type from an eejit.
It would be interesting to see what might be picked up on a 12 hr and 18 hr rpt CPET with controls or a 3 day rpt. Such tests might cast a light...
One problem here is that the 13% unexplained (I think referred to also as "idiopathic" by the NCU team) will fall under the category of...
Relief of 10 yrs 1st memorable thing that helped me was nystatin powder. Calf pains of 10 yrs standing gone within 1-2 days, and only mild and...
Good question. From what I know of restless legs there is (often at least) an imperative to move for relief. As to crawly sensations and...
Is exclusion of myoclonus as a sign of ME harmful, helpful or both/and? In the presence of a differential such as my own sarcoidosis, inclusion...
I read a page about turmeric being problematic for some with Lyme . The hypothesis was that it restrained cellular immunity and gave the...
Do you think there is any infection involved which would cause herx after abx?
My N-M stuff occurs at rest esp. after activity and most pronounced in states of infection or sarcoidosis flare. Ants crawling under skin...
Twitching in my experience has been palatal, inside the ear, digits, head twitch, jerking jaw, jerking legs etc, Some would be more like...
Everything I write must be caveated by the fact that Lyme, sarcoid, glycogen processing and/or autophagy issues are possible differentials or...
Problem is how to measure (what would a 2 day cpet show?) and how to define. An up for grabs term still imo.
I can tick off all the various ME criteria over 30+ years though some have come and gone. Differentials are possibilities - in my case sarcoidosis...
A good number of sarcoidosis patients report life limiting fatigue and considerable exacerbation consistent with PEME descriptions incl. reversion...
1) I thought that GWS does not show 2nd day worsening on 2 day CPET so any exertion intolerance in GWS should not ab initio be equated to PEM...
Their systems are based on belief or at least suspension of disbelief in cure X, Y or Z and on conformity to certain attitudes and practices. No...
Thanks Interesting.
Just had/having Covid possibly first time. I have had myoclnic jerks of legs, ankle, palate, in throat, jaw, fluttering in middle ear , twitching...
Fair enough. Thanks.
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