Search results

Looks like I was wrong - MEpedia says it's custom skin is based on Winter, which was the early prototype for Timeless. MediaWiki says this is all based on css and javascript so hopefully it will mean the issues can be sorted by MEpedia's developer. I wonder if some of the Timeless css bug fixes...

The Slack channel is invite only, I think you email the main MEpedia account to request adding. They need your email address I think to add you. mepedia@meaction.net

I get this too, but found the zoom option by the safari bottom bar helps sometimes, along with some scrolling, I have 100% zoom which is far more problematic than 85% I think. I thought it might have been caused by my custom CSS code but it must not be. Thanks for the screenshots.

same thing for me, I have flagged it up but I am not sure if it's caused by a bug I saw already logged by MediaWiki/wikipedia developers thank you for the screenshot and explanation @forestglip I will pass those on, what device and screen size are you using? We did have a choice of skins on...

I guess check you have the watch thing set for the thread.

Both "Pages in Need" (linked to from the side bar of the home page) and MEpedia:Suggested_tasks have priorities although so much ME research has been published/is getting published in the last 1-2 years that I personally find it hard to keep track of.

There isn't as far as I know, but the bugs seem to be largely coming from the Timeless MediaWiki skin I think (that's the one used on wikipedia) - I was involved in some of the upgrade and skin discussions (although I am not staff). I have some issues myself with the visual editor and honestly I...

That's brilliant! I had no idea this was possible. It will be really useful. The HitCounters extension is no longer being updated by the developer so it is limited.

Awful to hear of Whitney deteriorating again. To have any tiny enough improvement to be able to have a very slightly better life and have it snatched away is just the cruellest thing.

Whitney said clearly it was about ME/CFS and on instagram. I did actually visit today because of the UK Acu Seeds / Giselle Boxer ongoing frenzy. Charles Shepherd has criticised her for blaming patients for being "negative" (past TV appearance) and comments from her instagram has surfaced where...

Can someone put together a summary of what I am missing for my brain-fogged self? I have eventually got through most of the abstract. How many patients are likely to have this? How much symptom improvement did copaxone given in those who tried it? What I have so far: * some ME/CFS patients...

That is appreciated. However I stand by my words on Action for ME failing to organise properly by leaving things to late and blaming the pandemic (among other things) rather than accounting for the fact that both Brexit and pandemic were predictable issues, this was not March 2019 but a long...

Exactly what criteria are used for the saliva samples? I presume Post-exertional malaise but is it about meeting current UK NICE / SEID criteria, or ICC or CCC or any of the above? A link explaining this would be helpful. I don't see the point in people doing questionnaires who are excluded from...

US only, ages 18+ at the moment - could you add this to the intro @cfsandmore

Why is saliva not wanted from some people? Especially with the huge amount of funding. Is this a symptom base restriction, viral vs non-viral onset, random sampling or what? Why only mainland UK, the extra time in post for samples can't be the issue. I have already withdrawn due to continual...

Optimum Health Clinic has 2 informally resolved complaints from the Advertising Standards Authority - anyone have the detail on these? ASA doesn't show the info but most recent was Feb 2022.

Unbelievably the ME Association have removed their article about the ASA complaint on Gupta and have nothing else on it. There is a passing mention in their Alternative and complementary approaches to management download only. I have never known the MEA remove anything before... what's going...

Nebula is doing another discount - not sure how long for. Basic Whole Genome Sequencing $99 (should be $299) Deep x30 Whole Genome Sequencing $199 (should be $999) Ultra Deep x100 Whole Genome Sequencing $999 (should be $2999) then there is also an analysis / reporting tool and they insist...

Chronic illness Inclusion (CII) needs a shout out there, and Centre for Welfare Reform. CII have 5 reports out now, details here https://me-pedia.org/wiki/Chronic_Illness_Inclusion#Research.2FNotable_studies

December results, article by a man... https://www.theguardian.com/society/2021/dec/23/womens-health-strategy-england-six-priorities Results showed ME never had a chance. They got the plan wrong so anything affecting all or nearly all eg menopause would be chosen above what affects 1%. Why did...