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  1. Manganus

    A Swedish reporter is interested in reporting on the PACE Trial

    I have not proof-read the Google translation (edit: some comments in brackets now added), but at least in its original, untranslated state, the piece is not too bad:
  2. Manganus

    Does fatigue and distress in a clinical cohort of adolescents with CFS correlate with fatigue and distress in their parents?, 2018, Loades et al

    Can't comment on that. But: An alternative interpretation would be testing (indirectly) for genetic components.
  3. Manganus

    Autoimmunity Reviews: Dampness and mold hypersensitivity syndrome and vaccination as risk factors for CFS (Tamara Tuuminen et al - 2018)

    I'm returning to reading some other papers by Tamara Tuuminen. It seems to me as if the Finns have had a longstanding interest in moulds and mycotoxins. Already some 15-20 years ago, I had a sister-in-law working for a Finnish firm that made their living on investigating mould infestions in...
  4. Manganus

    5 dilemmas faced by the chronically ill as they age (from an ME/CFS viewpoint)

    Certainly! The idea of "five dilemmas" is probably most of all a mode of story-telling.
  5. Manganus

    Remission when ill with other infections?

    This seems strange to many people! But I'm more or less the same! In the last 10 years, the only flu-like condition I've experienced was when I tried with low-dose Naltrexone. Edit: ...well... I didn't think of... PEM is often said to be "flu-like", and of course there is a huge possibility...
  6. Manganus

    Active HHV-6 Infection of Cerebellar Purkinje Cells in Mood Disorders, 2018, Prusty et al

    They seem to be productive in Würzburg! :) From another s4me-thread:
  7. Manganus

    Shakar & Shakar on Sickness Behavior, 2015

    My impression too! (I was taught the concept in the 1980s. I never understood its being controversial.)
  8. Manganus

    Your OMF gift tripled this week!

    It may actually depend of what culture one comes from. This three-for-one is exactly how also I would have done it, if I had had a million to spend. I would think of other people's contributions as a sign that this fundraising goes to a good cause, and that my money may come to good use. Almost...
  9. Manganus

    The buspirone challenge test clearly distinguishes ME/CFS patients from healthy controls: why is it not being developed and deployed?

    I do agree on your estimation (close to 100%), but not on what you then write. ;) People who appear insane to their peers do really exist. And one way or another, they (or we) are to be cared for. Psychiatry is far from perfect, but still irreplaceable until better knowledge is achieved...
  10. Manganus

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    Thanks from me too. :thumbup: I've not read the transcript yet, but I will be able to, ultimately, contrary to spoken conversations. :(
  11. Manganus

    (not a recommendation) ME/CFS and Freeze: using Naviauxs research to explain the role of trauma

    This is also my judgement. :unsure: A pity, though! It might have been interesting, if she had been less focused on alt.med and the unproved polyvagal and "Social Nervous System" theories.
  12. Manganus

    Shakar & Shakar on Sickness Behavior, 2015

    How to explain the evolutionary advantages of Sickness Behavior. This article is from 2015. Maybe the scientific frontier has advanced since. Anyone knows? Anyway: I'm a bit impressed. :) Source: https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.1002276
  13. Manganus

    Parkinson's disease 'may' start in gut

    Very interesting. Thanks a lot for the link, @Hip ! (Once upon a time, when I worked at a department för infectious diseases, we had a few simmering disputes in the staff. One of them was whether axons are large enough to serve as a route for viral spread. I may have been wrong. I did not...
  14. Manganus

    The Placebo Response in the Treatment of Chronic Fatigue Syndrome: A Systematic Review and Meta-Analysis, Cho et al (2005)

    2005. Sir Simon Wesley, MD. Honestly, I would rather prefer to see someone else replicating this, with more trustworthy inclusion criteria. I would hate to refer to the MD who in 1992 explained symptoms of aluminium poisoning in Cornwall with "significant psychological factors."
  15. Manganus

    News from Aotearoa/New Zealand and the Pacific Islands

    Compared with what ME specialists say in other parts of the world, I wouldn't complain. For sure! But isn't that rather typical of clinicians? If I were a consulted physician, with my current experiences, I would have said the same (with exception for benzodiazepines, maybe). They can't...
  16. Manganus

    Cochrane ME/CFS GET review temporarily withdrawn

    Maybe my remark here is off topic, and I've currently no power to read all of the rest of this thread before writing a comment, so please forgive me if I'm spoiling the thread However, I do ponder how the term sickness behavior is used in English. When I studied (a rather long time ago), most...
  17. Manganus

    Sweden - RME news

    In English, October 17th: 14:10 Analysis of the Rituximab study and other immunological findings. Researchers from Bergen University 15:30 Advances in ME/CFS Research in USA Dr Zaher Nahle, ANRF, USA
  18. Manganus

    Dr Oaklander SFNP video - Small Fibers, Big Pain

    I agree! To me, personally, dr Systrom's is the most hope-inspiring lecture or interview I've seen this year. But dr Oaklander for sure is less burdened by latin and strange medical terms. ;)
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