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I also have carb cravings, and depending on the severity of PEM, mild (usually) nausea.

Congratulations Tom, well deserved!

@Oni I can’t offer any useful information but just wanted to say I wish you all the best for both the surgery and your recovery.

Thank you for the succinct summary - I was becoming confused

Same here.

I’m not shielding. I haven’t been able to since winter 2020. We all caught covid then via my then 90 year old father-in-law who brought it home from a hospital stay with pancreatitis. Government policy in action. As a result my mother- in- law died. My family really do understand covid risks but...

I don’t disagree that well intentioned celebrities spreading misinformation is a problem and adds to the difficulty of making progress. It’s disheartening, honestly, but I’m inclined to be more charitable than some of the comments here towards people like Miranda Hart (and also Ren Gill in...

@Trish don’t let it get to you, you tried :emoji_bouquet:

So AfME says So not a care and support plan after all then? It’s a self advocacy tool. Right, got it. *sarcasm* I would not use the document to self advocate because it’s misconceived, misleading and too onerous to use. The letter covers it. Thank you @Trish for your letter, and to all...

I don’t understand how this would tell us anything useful without control groups. How common might these proportions be in the general population? Families? (Edited to be clearer) As I suspected my arm span is longer than my height; we’ve just measured. I also know that is true of one of my...

Suggest adding academic credentials eg Professor Brian Hughes, university of *can’t remember*

If he has any wisdom at all Paul Garner should be reflecting that he doesn’t know his BPS bedfellows as well as he thinks he does. Sometimes the barrel of a gun looks a lot like a Guardian news article. I’m very grateful for all the work recently and over the years that has made it possible for...

This post has been copied and following discussion moved from Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot __________________________ If he has any wisdom at all Paul Garner should be reflecting that he doesn’t know...

I had my Covid booster just over 2 weeks ago. 1st & 2nd shots were AZ Booster was Moderna at a pharmacy. The pharmacy (Boots) was clearly doing it’s best in the space it had, but as masked socially distanced queuing was right next to shelves of products that people were leisurely browsing...

That’s ok, bobbler. I just hope I make some sort of sense. My brain doesn’t have much stamina these days and it quickly fails me. If your relative hasn’t read it I suggest they read the new NICE guideline. Clinics should now be following that. Perhaps you already suggested this. As well as...

Hello @bobbler and welcome to the Science4ME :). Firstly I should say that I don’t have a medical or science background, so I learn from others here. I’m sceptical of any claims that E.Crawley makes for her work as the research she has published reveals problems under scrutiny. She has a track...

I’ve tried them too Trish, which is how I know of the possibility. I don’t know how common it may be, not very I should think, but in my experience it’s not impossible. I don’t remember how many times in my case as it’s a long time ago. It could have been just once. It was just a thought.

It would have been so straightforward to have given numbers of participants, I wonder why they didn’t. The possibility of minty burps might might be a problem for the blinding.

Tymes Trust too.

Although you didn’t get the responses to specific points you wanted, or a more general acknowledgement that things Prof Jansky said were a problem, I think you’ve still achieved something. They know that patients are becoming increasingly well informed and they are on notice that they can’t...