There was a massive amount of work that happened prior to that to get the MRC on board and to work with Chris on a proposal.
And very little has happened since, Decode happened due to a lot of lobbying and was funded through the strategy board and working with the MRC to...
I believe lots of LC clinics are closing (funding gone) or merging with ME clinics (that don't really offer anything).
I agree - the paper didn't look like a good paper to me. It should also talk about ways to avoid and test for bias.
It is worth making the point that this is something that researchers and charities are pushing for, at the moment I can't see it happening without...
Given the history of ME research I think that is very naïve.
By focusing on the important questions - set out by the JLA exercise. Wise spending of research money will always be an issue but there can be a...
But similar results to recruitment through clinics.
The numbers are uncertain and my guess would be higher. The 50% does come from what few studies there are. The 400k for ME comes from Chris...
Lots of research money is wasted. But the notion of having some joined up strategy to build capacity and research platforms should tend to create...
There have been a number of studies Jason did one Estimating ME/CFS prevalence in individuals with long COVID. I think there was one study which...
As you know ME research is at a very very low level in the UK and across the world - there are very few researchers who know anything about it or...
I've always read bias in AI as being between the model and the real world. (data is just used to train the model). There is work on fairness...
There need not be privacy issues. If a standard LLM is used then this can be run on a system that is not connected elsewhere and data can be kept...
I've wondered if better stats could be created using an LLM to read and classify medical records of people to look for patterns/symptoms that...
I don't think they have ME stats the delivery report states 280,000 which is scaled from the assumed value of 250,000 a few years ago taking...
Were they paid I thought influencers basically made money by being paid to promote stuff.
If you are experimenting on humans then you need to show value from those experiments (i.e. show that the risk of carrying out the experiment is...
I suspect the whole mental health research industry has issues with measurement (too much subjective stuff and also some really badly done...
With the step test they published a bar chart with values but they turned down a FoI request from Graham earlier and @JohnTheJack may have got...
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